Tag: wordpress

We all march on…

img_1876.jpg

I’m just going to slide into this blog post acting as if it’s only been a blip in time since I’ve last posted. It’s okay to start this one out on a lie, yeah? Great, glad we’re in agreement there. Moving swiftly along…

Hi buds! Can you believe it’s 2019 already? I can’t! OK, great. Chit chat – done!

Life sucks. Pardon the melodrama here, but honestly it’s become such a drag lately I genuinely feel like all I ever do is whine and complain and I hate it. I’ve wanted to write about it for so long, but I felt like if I did, I’m just painting myself as this world-class complainer who can never see the good side in life. I don’t want to be that person in the slightest, so instead, I just shut up. But that doesn’t help me emotionally, and it certainly doesn’t help anyone else who cares about me and wants to help. So despite still having reservations about writing this post, here I am. Doing it anyway! *insert awkward grimacing face here*

The last you heard from me, I was talking about my husband’s vitamin deficiency. Plot twist! Turns out, that was never the problem. Also turns out, nobody knows what is the problem. Sound familiar? We’ve done this song and dance so many times, it’s almost weirdly expected now. We’ve been in and out of the hospital the last six months – the emergency department a few times – test after test, waiting for someone to find a lead and bring us closer to an answer to the problem. I’ve been having flashbacks to the time we had to do all this before his CRPS diagnosis, and it is honestly heart-wrenching (and unbearable) remembering it took years of suffering before a doctor diagnosed him. Can I handle that again? Can he? And even now, not all doctors agree that he does, in fact, have CRPS. Every doctor seems to have a differing opinion, but I guess that’s just the nature of a syndrome, eh? In any case, this was never a place I expected us to be back in… ever, let alone this soon after having just rode this crazy train to CRPS land. I want off the damn train.

Every day at work, someone asks me how I’m doing. It’s a natural, casual question, not intended to be loaded in any way. For the last six months, my answer has literally been the same no matter who asks: I’m tired. I keep joking that exhaustion is now just a part of my overall personality, but in my head I do kind of feel like it has overcome me as a person and I’m incapable of being or acting any other way. It’s exhausting being this exhausted! I find myself digging back through my photo archives, reminiscing about years before, wishing I hadn’t taken such a carefree life for granted now that I’ve learned how overwhelming it’d all become. Then the guilt strikes, hard, in waves, and I’m chastising myself for being so negative. My thought patterns are wildly unpredictable, and I can’t even keep up with myself most days. So, I keep it simple when people ask. I’m just tired, and leave it at that.

I’ve mentioned before that I often approach a new year by reflecting on the one that’s just gone, to shed myself of those feelings to begin anew each year. Most of 2018 wasn’t all too bad. Health-wise, my husband wasn’t great the majority of the year, but it had become our new normal and we were just living with it. I felt lonely and isolated a lot, but lacked the motivation to do anything about it. But toward the end of the year, the feelings of pride I had for handling the difficult life the universe crafted for me with grace were quickly replaced with intense fear, uncertainty and crippling anxiety. As his health degraded and new symptoms were emerging, we were absolutely gripped by what was happening. I more or less blacked out from September onward, unable to think of much else apart from his health and what I could or should do to help fix it. Every moment of my time was spent worrying about him, whether he was around me or not. Not only did the new symptoms present more problems going about our ‘normal’ lives, but they seemingly made previous, regular symptoms worse.

But when Christmas finally rolled around, he was starting to feel a little better, and since medical tests hadn’t found anything still, we thought maybe we were in the clear. A fluke, surely. He got back to feeling more positive, laced up his running shoes and stared his pain condition directly in its non-existent face; running each weekend brought him pain, but also joy. The thing that he loved most before the nerve condition turned up uninvited. He was doing it again (!!), slowly and very carefully, but I could see his pure joy and god, how fulfilling that is to witness. Short lived, of course. Isn’t it always?

A few months later, the symptoms were back: extreme dizziness, blurry and/or double vision, intensified pain, localised unintentional muscle contractions, insomnia. A change in diet had improved his gastro symptoms, but nothing else. Blood tests still revealed no abnormalities. I think I took it hardest at first. I felt foolish and naive – how dare I think the issue resolved itself overnight? Haven’t I learned anything in this journey so far? How could I let him down by not being the pragmatic one? I was livid. At myself, at this mystery illness, at the universe. Why couldn’t I help him? It all feels so unfair and I can’t understand why we don’t deserve a break. It’s hard. Every day I’m fighting my own emotions, it’s no wonder I’m this exhausted.

My resolution this year was to be more sociable and make more friends. One thing that makes dealing with my life so difficult lately is that I genuinely do not have friends to help me escape – my mind, the situation, my life (sometimes). Especially in my new country. I don’t mean that to be cruel or dramatic or insensitive to the people who are in my life, but to be completely honest, I do not have anyone who regularly checks in on me without me having to prompt it first. Maybe this is my fault. I can be very closed off and I’ve often backed out of plans with others (because, this life), so I can totally see how I’ve made myself unapproachable in general. Nevertheless, it is hard seeing my husband’s phone light up with messages from friends and colleagues simply checking in, asking if he wants to grab a drink, shoot the breeze – all because they want to. He’s got friends fairly regularly asking him to do things and he’s the one with the disability, but I’ve often been sat at home alone waiting for him to return (and worrying if he’s okay). Don’t get me wrong, I’m thrilled my husband has people in his life like this. It relieves some of the burden and guilt I feel when I think I’m not being or doing enough for him. But still, I’m jealous. I wish I had people who wanted to take my mind off the things troubling me most! And boy, is it hard to make friends as an adult. In any case, I decided I didn’t like feeling so lonely and pathetic, so that’s why I endeavoured to put myself out there more often – social anxiety be damned!

It’s slow going, I’ll admit. I’m still resentful that I’ve seemingly been unable to pick people to stay in my life of their own volition. I can’t help but feel like there must be something wrong with me for people to forget about me so easily or treat me unkindly. I still struggle to shake this ‘woe is me’ feeling I have so often. But! I’ve started to make new friends. People who have so far been kind enough to reach out on their own accord and invite me to do things, ask me how things are, assure me they’re there to talk or not talk – whatever I want or need at any time. I am apprehensive, at best. I want to trust that opening up to new people will bring in new friendships I crave, but I’m also afraid I’ll lose them just as quickly. My life is so unique to the average 20-something, and I’m hyper aware that none of these people may understand the life of a caregiver. Because that’s what I am, really. But I am still trying and being more social and slowly opening up to new people. It is likely I’ll get hurt. I know this – such is life. But if there’s even a small chance that one of these wonderful new people in my life will stick around, then it makes it all worth it. We need people. And I need people to help remind me that I’m still young and have a whole, exciting life ahead of me. To remind me that I am more than this situation. That my personality isn’t ‘tired’. That I’m someone who needs care and attention too, sometimes. I very often forget this down in the muck that is this medical nightmare. So to those of you reading this who’ve been so kind and understanding toward me – even without knowing my whole story yet – I thank you. You have no idea how huge of an impact you’ve already had on my life, and moreover, I hope you stay.

This isn’t an easy life. I’ve never foolishly believed it would be, but I never could’ve guessed I would experience such trauma in such a short span of time. Word on the street is that I’m strong and resilient, but I almost never feel this way. I’m proud of myself for sticking my neck out when I’ve been in need, though. This is something I’ve never been known to do or particularly good at, but I’m finding life a little easier to handle knowing I’ve got a bit of extra help on the outside. Even if that help simply comes in the form of a smiling face willing to take me away from my own thoughts for a bit. Every little bit helps.

So I end this post with one request: always be kind. And when you’re feeling least like wanting to be kind, be even kinder. You never know who is so desperately relying on your kindness just to get through the day.

Go as long as you can, and then take another step.

Thicker than water

IMG_5030

Some people survive and talk about it. Some people survive and go silent. Some people survive and create. Everyone deals with unimaginable pain in their own way, and everyone is entitled to that – without judgement. So the next time you look at someone’s life covetously, remember: you may not want to endure what they are enduring right now, at this moment, whilst they sit so quietly before you looking like a calm ocean on a sunny day. Remember how vast the ocean’s boundaries are. Whilst somewhere the water is calm, in another place in the very same ocean, there is a colossal storm.

This year has been simultaneously remarkable and harrowing. I always refer to my life as a rollercoaster because that’s how it’s often felt with the ups and downs and the loopty-loops. It still really does. And now as I sit here halfway through 2017, I’m quite thunderstruck just absorbing the fact that half of this year has already passed. Time is slipping through my fingertips at a rather alarming rate. Some days, it’s unsettling. Others, I’m grateful for it. Life is a balance, isn’t it?

I recently made a surprise trip stateside to see my family. Namely, I went back to see my grandparents who’ve not been in good health lately, as I’ve previously mentioned. When I was initially planning to go, I wanted to write about my week when I returned to London because I thought it’d be cathartic in some way. I’ve been back a week now, and my opinion has changed slightly. Part of me wants to spill every little detail about my week and commit it to ink, but the other part of me wants to keep it close, to myself and those closest to me. As a writer, the latter bit stresses me out a little. I’ve been relatively open about massive issues I’ve faced in my life, especially recently, and I do genuinely find catharsis when I put my feelings into writing. But my week in Cleveland was special, emotional and one I’ll forever hold dear. Because it feels cruel to write a blog and mention something as dramatic as a surprise trip 4,000 miles away and not say a peep about it, I will say this:

My week home was heart-warming, exhausting, happy, sad and very, very fulfilling. My grandparents and aunt were so incredibly surprised and thrilled to see me and spend time with me, and that’s all I ever wanted from the trip: to make them happy and aware that I was willing to drop everything in a heartbeat to be there for them. And I was. I was there. And I will be again if and when they want or need me to be.

It was not a holiday. It was not time off. I woke up every morning at 5am because that was 10am UK time and I worked a full day. Every day that week. Then by 1pm, the UK workday was over so I’d get ready for the afternoon and spend it with family. In the evenings, I’d squeeze in a few hours to see friends. I’d fall into bed every night absolutely shattered, mostly running on adrenaline, which seems to be my only fuel source this year. I rolled back into London on a Sunday morning and rocked right back to work that Monday. It was very hard, but I don’t regret doing it. It was the right time for me to show up, and I’m so, so glad I did. However, I have no idea how I’ll ever top that kind of gift! Think I set the bar too high for myself…

I still don’t know what’s next in this long saga of continuous chaos. Some days I’m optimistic and strong and cheery, other days I’m a moody, grumpy lump on a log for no discernible reason. Some days I’ll talk my friends’ ears off about what’s bugging me or what I’m excited for, and other times I force them into an awkward exchange with lots of one-word answers and uncomfortable silences. I don’t know how people are meant to handle the things I’ve been going through this year, and I don’t know that there’s really a guidebook for any of it either. Day by day I take things as they come, and meet them with whatever mood happens to me. I never have proof of my strength and I often feel like a wimpy, whiny baby, but I’ve been told that I’ve been doing okay so I take that as a success and keep moving forward.

My life isn’t better or worse than anyone else’s. While it’s hard not to feel like the world owes me something, I want to believe that everything happens for a reason. Maybe this year is a year for hard-earned lessons that will prep me for whatever 2018 has coming my way. I don’t know. I can’t know for sure. But what I do have now that I didn’t have before is experience. I’ve learned way more in these last few months – about myself, life, humanity – more than I ever could’ve imagined I would.

This life is precious. Although it’s cliché, you never know what tomorrow may bring. I do what I can in a day, and then I’m done with it. I make time for what I want and need, and do my best now to strike a better balance between work and my personal life. Work still seeps into my personal life, but it is a choice and not a requirement. I am grateful to have friends both here and in my hometown, all of whom show their support for me when I need it. Life isn’t about merely surviving – it’s about living, right? That’s what they say.

So I guess this post is my thank you to everyone who’s been following my life thus far, offering tid bits of ‘you’re doing great!’ and ‘thinking of you’ comments here and there. I imagine from the outside looking in it’s been pretty dramatic and entertaining, so I can’t blame you for wanting to know how I am and how things are going. Thank you for caring. Thank you for striking up conversations even if I look unapproachable. Thank you for spending time with me even on the days I’m not very communicative. Thank you for being constant beacons of light when I’ve not even realised I was in the dark. I am so very grateful that even on days I feel like I’m dealing with this life alone, I’ve never actually been alone. It’s been quite the adventure so far, hasn’t it? Here’s hoping for tomorrow…

The edge

d6bb7b3cc3ea456e1dbea19e27876237

The day doctors confirmed my grandfather had cancer, I cried in the bathroom at work, finished off the following hour in the office, then left early, unable to truly focus. I went straight home to buy him tea. A few weeks prior, my mom mentioned my grandpa really enjoyed tea I had given he and my grandmother, which I purchased here in London, but I couldn’t remember what type of tea it was to save my life. So I did what any sensible person would do: I spent $100 on different varieties of tea and shipped it to them. That’s right, my first instinct upon hearing my grandfather’s diagnosis was to send him tea.

Even thinking about it now, a few weeks on, I can’t help but think how strange of a reaction that was. But in my head, it was an action. It was something I could do to help from afar, albeit a very small action with seemingly little impact. All I could think was ‘what will make my grandparents smile during such a traumatic time?’. Hundreds of tea bags would do the trick, I thought. I think it did… but it still doesn’t feel like enough. Which begs the question – what would be enough?

For those of you following the snippets of my life that I serve up via blog post, you’ll know I’ve been dealt a number of awful cards in my time on this earth. Just in the last year alone, I’ve faced a slew of horrific ordeals and hovering unknowns. I thought I was closing the book on the majority of these issues when my husband had life-changing surgery about 8 weeks ago. It’s been a slow recovery, but he’s on the mend and his quality of life has sky-rocketed into positivity. I know now, however, that I was not closing the book, but simply a chapter, as I face another seriously stressful and scary situation happening to yet another person I love.

I’ve been in this situation before: far away from someone I care about dealing with a scary health problem. It doesn’t get any easier. But whether I’m there or here, it still impacts me the same. I’m scared and I want to help, but I’m hyper aware that there really isn’t much I can do. So here I am, continuing on with life as if I don’t have something else heavily weighing down my conscience, feeling helpless and isolated.

I’ve kept this subject quiet for quite some time. My grandfather fell ill a few months ago, and that’s when the subject of cancer came up. But cancer is horrifying. I refused to believe it was even a possibility until I received categoric confirmation. I couldn’t let it impact my work life because my situation with my husband had already interfered heavily. I couldn’t bear having to admit to my superiors or colleagues that, yes, here I was again dealing with yet another medical nightmare. But more importantly, I didn’t want anyone to pity me. I know I don’t give myself much credit, but I know I’m strong. I’ve handled terrible situations with a level of grace I’m still not sure is my own, so surely I could put my brave face back on to get through another workday.

My grandfather is the toughest guy I know. I’ve always said he’s too stubborn to die, and I still very much believe it (hope you’re reading this, Papa!). I’m so glad he’s got my grandmother to help him through this journey, despite the scary health issues she’s enduring herself. I fully believe in the power of love, and how this magic ingredient helps so many of us pull through each and every day. I only wish I could be there, in person, to help them both. They’re such an integral part of my life, and I feel like I’m doing them a disservice being thousands of miles away. But here I am.

I don’t want pity and I don’t particularly want to discuss this subject with anyone because it’s still raw… so why the heck am I writing about it, you ask? Well, it’s simple: I want people to understand that we’re all dealing with things behind closed doors. That not everything is as it appears. I beg you to please be kind to people, always, no matter your own circumstance. I can’t count the number of times I’d return home from a rather rough day at work, shouldering the weight of others’ roles plus the mental anguish I was already juggling, collapse into tears and wonder if maybe had I expressed what was happening in my personal life, I’d earn some compassion from others. But I didn’t want to talk about it. I still don’t want to talk about it. I shouldn’t feel like I have to pour my heart out just so people will be nice to me. I was taught to be kind, so why can’t I be granted the same courtesy?

Look, I’m not here to complain. Life has a tendency of kicking you in the teeth, but you still have to get back up to finish the day. I’m the poster child of this! But I’m also not too proud to admit that I’m tired. I’ve not had time to bounce back from my husband’s ordeal, who still has a number of months of recovery ahead of him. Yet here I am, still trucking along, dealing with every little thing the universe throws my way. Not always in the best way perhaps, but I’m getting through the mess the only way I know how.

I don’t know what the future holds. If I’ve learned anything in the last few years, it’s certainly that life has a way of keeping you on your toes. I like to think I’ve navigated the obstacles well, but it’s hard to say. The only thing I seem to have any control over is how I deal with all of this – and how I choose to allow it to affect my life and the people around me. And most importantly, I’ve learned to keep going. I’ve wanted to throw in the towel so, so many times and just crawl into bed and never leave. But I haven’t. And I haven’t stopped laughing or spending time with friends, I haven’t neglected work or failed to help out my husband. I haven’t given up. I won’t give up. My grandparents haven’t, so I think I’ll follow their lead.

Anyone can slay a dragon. Try waking up every morning and loving the whole world again. That’s what takes a real hero.

All forward motion counts

img_2419

On my last day of CBT, I spent the full session sitting in my chair sobbing uncontrollably, muttering ‘I’m sorry’ in between gasps for air, ‘I don’t know why this is happening’.

A few weeks before Christmas, I self-referred to a local mental health clinic in an attempt to gain control over my thoughts and to learn coping strategies when things felt like they were spiralling out of control. It was something I’d always thought I should do, but never felt I was ‘bad enough’ to require outside guidance. I’m fiercely independent, and I always want to be able to take care of myself without anyone’s help or input. But as my husband’s condition was worsening and the future was quickly filling up with more and more unknowns, I realised now was the time to admit that I needed help. I genuinely felt like I couldn’t face whatever came next for his treatment unless I was properly prepared. So I signed up for a 6-week CBT one-to-one course (cognitive behavioural therapy), intended to analyse the way I reacted to situations, then work to implement changes to disrupt the negative pattern I had fallen into. It sounded like the perfect thing for me to do: it would be work, but it would come with noticeable results.

I kept it quiet from most everyone. I didn’t want anyone to know that I was working on myself because I didn’t want to admit that 1) there was anything that needed fixing and 2) that it was affecting anything more than myself. To be completely honest, I was so stressed and so panicked and so overwhelmed that it was affecting a lot in my life. My anxiety had gotten so extreme that I wasn’t leaving the house except to go to work, and even there I wasn’t myself. I needed help, but I didn’t need to broadcast it to everyone. I wasn’t ready for that.

So I went home to America for the holidays and tried my best to relax during my time off knowing that when I returned, it was time to get to work. And I did. Every week, I went in for my appointment and talked about how I react to situations and how they’re affecting me and how I thought I could change that. I’m not a therapist, but CBT itself is pretty straight forward. It’s goal-oriented and something you can track progress on paper. Each session I’d walk in with my homework in hand ready to discuss it, and each week I was transparently told how well I was doing. I felt pretty proud of myself, and received the positive affirmations I needed each week to keep me working toward a better me. I was slowly breaking the pattern that I knew played a major role in my recent demise. I was clawing my way back up to the surface each week, and for the most part, it felt pretty damn productive.

On my last day of therapy, I had recently gotten incredibly stressful news about my husband. He was due to get DRG surgery in the coming months, but we hadn’t yet been given a date for the surgery (a type of spinal cord stimulation targeting your dorsal root ganglion nerve bodies at the base of the spinal cord). We were just anxiously awaiting a phone call from the hospital that could’ve literally come any day, which meant most of our life plans were on hold or tentative until we knew what was going on with his surgery. A very tense way to live your life, let me tell you. Anyway, we got that call, suddenly, when we weren’t expecting it in the slightest. But it wasn’t the call that threw me – it was that the hospital called to ask if he could come in for surgery three days later. It’s one thing to know you’re waiting for life-changing surgery, but it’s something completely different when you’re asked to get it done in mere days! However, I thought I handled that experience with ease: I was calm, strategic and gave my husband logical advice. When we finally determined it wasn’t the right time to drop everything for the surgery and we’d rather wait for a later date in which we could plan properly, I hung up the phone feeling proud of myself for handling it like a mature adult. Pre-therapy Tanya would’ve completely crumbled from the stress of the situation, over the need to give the hospital an answer within the hour. Panic would’ve taken over and I would’ve been crying in the bathroom desperately trying to compose myself before getting back to work. But not this time! This time I handled it like a pro, and although I still felt a little jittery from the whole ordeal, I survived and I was able to get back to work comfortably. Or so I thought.

When I eventually had my final therapy appointment, I walked in prepped and ready to tell my therapist how I dealt with a scary, overwhelming scenario like a boss. A ‘look how much I’ve learned already’ show of achievement. I walked in smiling, sat down and started explaining how the situation came up and how I responded to it, and the minute my therapist asked what I would’ve done if my husband had taken the early surgery date… I burst into tears. And they didn’t stop. The entire session. I kept apologising and muttering that I didn’t know why this was happening and I was fine the whole time until I walked in that door and how it didn’t make sense and that I was sorry, sorry, sorry. She told me it was a completely normal, emotional reaction and it just showed how much I cared about my husband, and how that type of worry is and will still be normal. She explained the stress of his medical situation is unique and how I need to stop viewing my tears as weakness. I don’t remember every detail of that appointment mostly because I was utterly embarrassed and surprised at my own reaction. I mostly remember her telling me I was strong and proactive, but that maybe I needed something a little more than CBT and gently suggested I pursue treatment elsewhere. I know she meant well, and I know she’s probably right – I need treatment catered specifically to me and my situation because it’s too, uh, complex, for generic therapy plans. But I couldn’t help feeling like I had failed therapy. I was doing so, so well only to completely lose it on my last day with an emotional reaction I didn’t even know was in me. I thanked her for everything she had taught me along the way, asked her to send me info for further treatment and took my sobbing self to the bathroom to cry in peace. My husband eventually had to meet me on the walk home since it became evident I wasn’t going to compose myself any time soon.

At the end of all this, we did get an appointment date through for his surgery. It’s in a few weeks time, actually. We were able to go away on holiday beforehand to get some sun and proper relaxation before life as we knew it will change. I haven’t yet signed up for new therapy. I still don’t know if I will, and I imagine it hinges on whether or not this surgery goes well. But for now, I’m applying what I have learned so far: I don’t know what will happen after this surgery. I don’t know if it will be the saving grace we’re after or if it’ll send us back to square one. But I do know that these ‘what ifs’ are not helpful, and we’ll tackle the outcome when that day arrives. And I’m still trying to remind myself that I am strong and despite feeling weak more often than not, I have every right to be proud of how far I’ve come so far. This stuff is absolutely terrifying. I wouldn’t wish any of this on my worst enemy. I know I’m going to be emotional when his surgery date arrives, but I know I’ve got some tools to help myself this time around. And if I find myself falling short – I have options. That, in itself, is empowering. There’s no reason I should ever feel I’m going this alone. And it’s about damn time I realised that.

You’re looking for the explanation, the loophole, the bright twist in the dark tale that reverses your story’s course. But it won’t reverse – for me or for you or for anyone who has ever been wronged, which is everyone. Allow your acceptance of the universality of suffering to be a transformative experience. You do that by simply looking at what pains you squarely in the face and then moving on. You don’t have to move fast or far. You can go just an inch. You can mark your progress breath by breath.

Cheers, 2016!

15820433_10154889187796350_340628502_n

So 2016, now’s the time to say our farewells. I like to try and take the time to reflect on the whole year that’s passed before I allow myself to start planning for the arrival of the new year, so here I am – at it again!

This past year has been a rather difficult one, to say the least. I’ve moaned and griped for quite some time now, but I’ll be happy to put that to bed and start fresh… after this last post!

2016 began slow for me. I had just moved to London and was still struggling to find a new job in line with the new career path I was pursuing. I was noticeably despondent – feeling sorry for myself and feeling like I was never going to find my place in my new city. But by March, I had happily accepted a new gig in the travel-writing sphere and threw myself into work full-force. Although I was happy to work, I still found it tough to transition into an atmosphere that was totally new (and vastly unconventional) to jobs I’ve held previously. The environment was bubbly and relaxed, and everyone seemed to be best friends with each other. A huge contrast to the news industry, from my experience. I felt awkward for many, many months, fearful that all the times I turned down tea from my coworkers would make it seem like I was rejecting British culture! But it didn’t take long for me to chill out and find my place in the office, although I’m still partial to coffee over tea. I got a promotion within 6 months on the job, which certainly helped me feel valued. But most importantly, I made friends I hope will last forever. My colleagues may not know this, but they’ve helped London feel like home – something I had been missing the first 6 months post-moving abroad. I can’t imagine working anywhere else. I truly struck it rich.

My new job has also helped me survive my personal life this year. As many know, it’s been a tough year in my marriage. My husband’s nerve condition spread to his hand, and it had been so painful for him that it had an immediate effect on both of our lives. He was hurting, angry and scared, and in turn, I was the same – just in my own way. With the sudden changes in his health, we found we were asking questions we never thought we’d have to ask before: are we running out of time to have kids before his condition is too bad that he can’t help me in raising them? Will he be able to continue working? Can I be the help he needs? Who can help me deal with this? I was working to escape the stress of my personal life. The office became my sanctuary and my breathing space. I found focusing on my work a happy distraction from all the fear and worry swirling around in my head on any given day. My colleagues were supportive and nice and understanding, but also gave me the space I craved and needed at times. They helped give advice and suggestions when I needed them, or offered ideas I wouldn’t have thought of on my own. I don’t think I would’ve dealt with this year’s drama as well as I had if it weren’t for my incredibly supportive colleagues.

I relied heavily on family this year too. Though I’m sure they already know it, I think it’s worth mentioning my gratitude: Thank you to all my family members – kin and non – who’ve been there for us when we’ve needed it most. We’ve got a global support system, and we can’t thank you enough!

The stress of the medical issues in our lives was enough to crumble our marriage. But it didn’t. We got through some incredibly horrendous moments and became even closer and more enamoured with each other at the end of it all. We left London toward the end of December feeling hopeless about finding relief for my husband. Our doctors in the UK led us to believe that my husband didn’t have any other options available to him. That pain relief was impossible, and the best they could do was continue to prescribe drug after drug in an attempt to manage the pain. But we didn’t take this as a final answer – we couldn’t. We made an appointment at the Cleveland Clinic for a second opinion, feeling like there must be some other medical professional in the world who could offer us new information. It would be expensive, but how could we ever put a price tag on quality of life?

Turns out, that one appointment was all it took to regain the hope we had lost throughout 2016. We met doctors who very clearly understood his nerve condition on a level our previous specialists did not. They gave us new ideas to pursue in finding ways to relieve the constant pain he’s in, and even trialled a new medication we had never heard of before. We feel like we can now return to London armed with new knowledge – plus a team of US experts ready and prepared to help us should Europe be unable.

And me? Well, 2016 tried to suck all the hope and happiness from me… and nearly succeeded. It hasn’t been easy to keep my head above water, but despite everything, I’m proud to say it taught me a lot. I’ve gained tools and a support system that I didn’t have before that are helping me be strong and positive and goal-oriented. I feel more prepared than ever as 2017 rounds the bend, and that is a pretty great feeling!

So good-bye, 2016! It’s been a weird and arduous year, but I’m leaving with a new outlook and newfound hope for a successful and positive 2017. The best gift the year could’ve given me.

When you start to feel like things should have been better this year, remember the mountains and valleys that got you here. They are not accidents, and those moments weren’t in vain. You are not the same. You have grown and you are growing. You are breathing, you are living. You are wrapped in endless, boundless grace. And things will get better. There’s more to you than yesterday.

Wants, needs and the struggle of choice

Image

“One of the most troublesome things in life is that what you do or do not want has very little to do with what does or does not happen”

We are creatures of habit. We like routines and plans and knowing what’s in store. Let’s face it – most of what we choose to do is chosen merely to try to force a particular, desired outcome later down the line. Those of us who claim to be spontaneous and adventurous aren’t 100 percent honest because even then, we are making a choice to obtain a specific result. The difference is we do so suddenly and very quickly, right? Personally, I’ve always been the type of person to prepare and plan well in advance to avoid any surprises popping up in the future. Realistically, this is an absolute ridiculous mindset because it’s impossible to deter all surprises, but I did my best to mitigate as much as I could. I always had a plan and a pocket calendar to write it all down in pen – never pencil. There’s no room for uncertainty like that in my planner! But my problem was that although I felt prepared for the things I had control over, this didn’t equip me to deal with changes to my plans gracefully. So while 21-year-old Tanya would’ve insisted that I would be out of the country by the summer after graduation and writing for some great foreign company, she was blindsided by what the universe actually threw at her. So while my plan was and still is to get out and live elsewhere, the timing has changed drastically and I was forced to readjust. And that, as some of you may know, is not an easy thing to do.

Hunter S. Thompson said, “On some days, you get what you want and on others, you get what you need.” What tends to be tough to swallow is that what you want may not be what you need… and vice versa. They don’t always go hand in hand, so how do we prioritize between the two? To put it more simply: which matters more? Obviously, this is completely up to your own interpretation, but I think it comes down to specific scenarios. For example, I want out of my hometown, but I need to feel secure enough to move far away. My desire to move is completely reliant on being properly prepared to actually follow through. So in my mind, this means many things: secure finances, sufficient work experience and timing. However, I always struggle with that last condition because that falls outside the realm of my control and sometimes my understanding. How will I know if the timing is right or not? Is the timing a direct result of whether or not I have the other two conditions fulfilled? And when you spend so much time trying to figure this all out in your own head, it tends to end with you throwing your hands up in the air and sighing, “Well, hopefully I’ll just know,” as if we think our intuition will guide us the right way. But our gut’s been wrong before, remember? Oh, great. Now what?!

In my personal example, I chose to go with what I needed more so than what I wanted at that moment in time. It was a painfully hard decision to make that was met with many tears and empty demands to know why (Oh, why!!) I had to make such a choice. I had a limited amount of time to decide, for myself, what mattered most. That’s an immense amount of pressure to deal with without knowing what, exactly, would follow. So did I make the right choice? I have no idea. Ask me in 20 years. For now, I think it’s best to just hunker down and stick to what I chose. Ride it out to the fullest and revel in it. I didn’t throw my fate up in the air to chance, so I have to be content with my decision.

“I’ve been doing this a long time, and I’ve come to learn that predictions don’t mean much. Too much lies outside the realm of medical knowledge. A lot of what happens next comes down to you and your specific genetics, your attitude. No, there’s nothing we can do to stop the inevitable, but that’s not the point. The point is that you should try to make the most of the time you have left.”

I know that even more changes will spring up down the road and I will have to face them without having prepared for them. That’s the way life goes, right? Sometimes I’ll have to deal with things one-by-one, other times everything will barrel toward me at full speed all at once. I will continue to try to plan for a future the best I can, but I have to allow myself some wiggle room for when the plan has to change. It’s all about attitude and how we act when things don’t go our way. As I said, we can’t control time but we can control how we spend it. So make the tough choices not because you have to, but because you want to keep going and living and growing. And when things don’t exactly go to plan, don’t take it personally. Adjust. “‘It’s not a personal world,’ he told me, ‘no matter how much of it recognizes you on the street.'”

New angles

nyhab

Rejection emails are the worst. Especially the vague, standard, sometimes automated emails that simply add to the suspicion that even if you are truly enthusiastic and well equipped for a job, you don’t matter unless you can prove it on paper. Passion is an asset that employers should seek out, but it appears that more and more companies have values elsewhere. I applied for an entry-level social media position at New York Habitat because I felt passionately about the work the company does, I knew it was a job I would enjoy and I wholeheartedly felt I possessed all of the qualities – both in my personality and my knowledge within the field of work – to perform well and quite frankly, make improvements. The millennial  generation is one that is not only eager to learn and make their mark in this world, but has also grown up learning to use improving technology to their advantage. Many current job listings in marketing, for example, are advertising positions that seek 5+ years experience in digital marketing when digital marketing only just became an effective form of marketing within the last few years. Therefore, how can companies use an experience level like this as a prerequisite when it’s literally impossible to possess? It makes more sense to hire some hot-shot recent graduate who has been effectively using digital marketing nonstop for the last few years, who is constantly looking for new ideas and better ways to make an impact because that’s exactly what they’ve known to do throughout their young lives. Or maybe I’m wrong. Maybe a middle-aged individual who learned marketing in the 80s deserves the position. I’m not saying recent graduates should always prevail when it comes to new hires, but in certain fields, it makes sense. What do you think?

I’ve read a whole bunch of articles and blogs that give advice to recent graduates about how to snag a job. I’ve read them, I’ve nodded and agreed that I possess the main qualities employers look for, and yet here I still sit– skimming through automated rejection emails with no way to find out why my application didn’t meet the company’s “needs.” As mentioned in my previous blog, I’m willing to do whatever it takes to show that I deserve a job in my field that I can enjoy. Within 24 hours of posting, “What works,” more than 240 individuals across the globe read my blog. Not only that, but people I don’t even know personally were sharing the link on social media, reaching out to the company I wanted to work for and telling them that I deserved an interview. Not only is that humbling, but the fact that these people were basing this belief merely on the fact that they could see my unique passion via blog post surely must mean a lot, right? So here’s my question: What am I doing wrong?

I’m aware that the job market sucks for recent graduates. Nevertheless, I don’t want to use this as an excuse for why I can’t seem to get a job doing something I’m qualified for and can honestly enjoy. If it’s something that is going to dominate the majority of our waking lives, we shouldn’t compromise for it. Simple as that.

Since my first unique attempt at getting an employer’s attention didn’t go to plan, I’m going to augment it a tad. So here is my open cover letter to any employer or recruiter looking for a new hire, or for any individual who wishes to aid in my job search. Feel free to share this blog with social media – Tweet, Facebook, share on LinkedIn or Google+, pin on Pintrest – whatever! Operation Find Tanya A Job has broadened its goal and I need YOUR help! Tell the world I want to work and that recent graduates deserve a fair shot! If you have any helpful advice or critiques, shoot me an email at tparker259@yahoo.com. Here’s what I’ve been up to for the last few years (TanyaParkerResumeOH), and here’s my no-nonsense general cover letter (TanyaParkerCL). Pass it on!

Social media sparks a revelation that we, the people, have a voice, and through the democratization of content and ideas we can once again unite around common passions, inspire movements, and ignite change.