Tag: proud

Keep rolling under the stars

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Hi buds! This sure has become a pattern for me, huh? Dripping life updates at a glacial pace. I always apologise or throw up an excuse for why it’s taken me so long to post something new, but really I’m not all that sorry and I don’t have an ‘excuse’. I post when I feel ready to a) share and b) delve into the emotional complexities of the situations I’ve been going through. And at the end of the day, this blog is for me, mostly, and you just get the pleasure of coming along for the ride. So I say: you’re welcome. And also thanks for taking the journey with me. Coming to a cinema near you! Not really, but wouldn’t it sell!?

Truth be told, I’ve been plodding along rather contentedly the last few months. But today is World Mental Health Day, and I’ve been inspired by my colleagues who’ve taken time out of their days to share personal stories of struggle, with tips on how they’ve overcome them. I’ve been exceptionally reserved and introverted at work, keeping all personal details about my life to myself for various reasons. Mainly, I found it incredibly difficult dealing with the day-to-day once my colleagues at my previous job knew about the struggles I was facing. Though they all meant well and logically I was fully aware of this (even in the moment), it became far too painful enduring very personal questions, often uninvited. Once I opened up, it’s like I couldn’t keep anything to myself anymore. My story and my struggle were no longer mine alone, and everyone always wanted to know what was happening. When I left and began my new job, I vowed not to let this happen again, and reasoned the best way to avoid personal discomfort was to shut up and keep to myself. I think I’ve done quite well, though I’m not sure it’s really been as beneficial as I thought. I work with amazing people (hi colleagues!), and I do feel guilty quite often for not letting any of them in.

I genuinely believe talking about things out loud helps make even the scariest of scenarios seem a little bit less daunting. But I’ll tell ya from experience – it sure isn’t easy to start. A constant ripping-off-the-bandage feeling, most often accompanied by unwanted tears. We’re always embarrassed by our tears… why is that?

Anyway. Life. What’s happening? How am I? Well, as I said, I’ve been relatively fine considering most things. I want to attribute this to growth: learning how to better cope, how to respond to my own reactions, talking to people when I need guidance. I realise that I’ve not actually been better, but the improvement in my response and recognition hasn’t gone unnoticed. For example, just the other night I had a panic attack. These are not uncommon for me, and they’re really horrific to experience. I liken it to feeling as if you’re drowning, in quicksand, being fully lucid yet paralysed, in -100 degree chill. It’s awful. But this time, I felt the panic attack coming on, was able to tell my husband just before and he helped me get through it; talking to me, insisting I try drinking water, rubbing my back. Within minutes, I had regained control and was out of the panic attack. It’s the quickest I’ve ever done it, and to me that feels like progress. I’m still the same person, but maybe a better version of myself. It’s taken awhile to get here, though, and a whole lotta courage.

And it’s never really done.

Things have been especially tough for, gosh, an entire year now. My husband’s seemingly ever-evolving medical issues have more or less called the shots on the daily. However he feels is how the day goes. On bad pain days, which are most days now, all responsibilities fall on me. I know he absolutely does not mean for it to burden me and I know it kills him to ask me to do something like get him a glass of water because he simply can’t bear to stand up, and I hate he subsequently experiences two kinds of pain from these situations, but it has been hard for me. I’ve had to literally learn how to cook edible meals or force us both to starve on days he can’t cook. I’ve had to run across the city at the last minute because he needed me for emotional support during a flare up. I had to paint almost the entire flat by myself because he couldn’t muster more than near 10 minutes on his feet. I’ve had to abandon family events to get him home and back in a comfortable space. I’ve become a human WebMD. I’ve been forced to become physically stronger so I’m able to push a man twice my size in a wheelchair. If I’m ill, but he needs me, he comes first without hesitation. I’ve had to watch the love of my life continually suffer, unable to take away his pain. Still. I’m honestly still so exhausted every minute of my life, but I do all of this and more because I want to. Because that’s what love is about: being partners, and helping each other when needed. I do not resent him or blame him for any of this, and he knows that, but he also knows it weighs on me. We do what we can for each other, when we can.

Recently, we’ve learned he’s vitamin deficient, which has caused severe bouts of dizziness and too-many-to-count near-collapses. This deficiency has appeared to cause even more problems with his nerve condition, though doctors haven’t medically linked the two yet. We’ve become so astute to his symptoms, we can’t help but notice the parallels of pain flares and dizzy spells. We wonder how long he’s been so deficient? Was he always? Is this something we missed that could’ve prevented further damage had we realised sooner? Is this why the spinal cord stimulator hasn’t been helping? It’s impossible not to wonder these things, but completely fruitless at the same time. We know this. Yet we still wonder. It keeps me up at night now, despite already having issues with insomnia.

Dealing with this has never gotten any easier. I’ve just gotten better at it. I’ve stopped allowing myself to feel like I’m missing out on something by staying home with him because I want to stay home with him. I don’t get upset when he has to tap out of an activity quickly and asks me to step in because I expect this now. Well, I’ll be honest, some days I do still get upset because it gets hard ya know? But I’m so much better now.  We didn’t choose this life. We didn’t ask for it. We don’t want it. But it’s the life we have. We’re doing our best to make it work for us.

I can say today, with the utmost pride, that my husband has actually been an inspiration to me, despite what he may think sometimes. One day not too long ago, he announced to me that he was done feeling sorry for himself and letting his nerve condition determine his life. And that was it. Though it very obviously still does make most of our decisions for us, he no longer gives CRPS power over him. It’s amazing. He’s gotten so much better at acknowledging the pain, adjusting his actions, and getting on with things. He still wants to go for walks with me even though I know it causes him a great deal of pain. He doesn’t want to miss out on things he genuinely wants to do, and though it took us more than 5 years to get to where we are now mentally and emotionally, I am constantly in awe we’re managing it. He’s excelling at work and still makes it into the office every single day, even though he has to get a cab to and from. He’ll text me in the middle of the work day saying he’s in so much pain he wants to throw up, then after a quick pep talk gets right back to work and never gives up. If you want to know strength, you should meet my husband. He doesn’t make it look easy, but he makes it look achievable in impossible situations. I admire him more than he realises. I aspire to be this strong.

My biggest struggle of late is not being as honest as I can be about my issues with people who care about me. I don’t let anyone in because I find it hard to make them understand what I’m going through. They don’t understand how severe it is. They don’t see it. And as a result, I get angry and incredulous and stubbornly decide I’m done sharing with everybody because they just don’t get it so what’s the point? And when anyone seriously asks me about my husband and how he’s doing, I get emotional every single time. I can’t help it, and I hate it so much that that also prevents me from sharing. But the catharsis can help. I endeavour to try to be more open for my own sake. It won’t happen over night, but if I can claw my way out of a panic attack, then there’s hope for me yet.

There’s hope for all of us, really. We’ve just gotta believe it ourselves.

When you recognise that you will thrive not in spite of your losses and sorrows, but because of them, that you would not have chosen the things that happened in your life, but you are grateful for them, that you will hold the empty bowls eternally in your hands, but you also have the capacity to fill them? The word for that is healing.

The cost of love

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When you’re young, you never associate paperwork and deadlines with a wedding. Planning a wedding is meant to be romantic and exciting, and it’s supposed to be that “making your dreams come true” kind of time. Dresses and tuxes and flowers and dates and parties and venues – all of these things happily float around in your head until it all comes together, culminating in the best day of your life. Well, that may be true if your significant other has the same nationality as you. You could throw together a wedding tomorrow if you were in a rush and get on with your lives together immediately! But some of us aren’t that lucky.

I love my fiancé more than life. I’m so happy I met him and I’m thrilled to some day call him my husband. But while I’m still excited to actually get married, the planning process of figuring out how to actually marry my English fiancé has almost completely sucked the excitement out of my engagement. Isn’t that awful? Here’s why:

For my fiancé to come here, we would have to apply for a visa. Have you seen or heard of the show on TLC called “90 Day Fiancé?” It’s kind of like that, except way more complicated. If you happened to watch the program, you’ll have noticed that when it first started, each couple mentioned how they’ve been with his or her significant other for at least a year or more. That duration is important to note because that means there was about a 6 month block of time where they were just sitting around waiting for the visa to simply get accepted. Why would it take that long? Well, to get what’s called the K-1 Visa, there are roughly one thousand steps. First, you have to simply petition for the visa. That’s not applying, folks. You have to state your case before you can even apply! And this petition, in which you must provide biographic information (proof of citizenship, census evidence/school records or/certificates of religious rites/every minute detail of your personal existence), a police certificate (preferably a clean one!), evidence showing that you plan to marry within 90 days of entry in the U.S., evidence that you have met in person, more forms (G-325A) specially formatted passport-style photographs taken within 30 days of filing the petition and other little details are all for the low, low cost of $400! After all that stuff is turned in, then the U.S. government may still turn around and request more evidence or require you to be interviewed before accepting your petition. When and if your petition is accepted, THEN you can apply for the actual visa. This part also includes the interview. You know, like in the movie The Proposal when Sandra Bullock and Ryan Reynolds try to get married. Seriously, it’s very similar. If all your paperwork checks out and you can prove on paper that you’re not making up your whole history and relationship, then you have to sit before a government employee and answer any questions they want to ask about you and your relationship. I’ve been told that these questions can get quite personal as well, so that sounds fun, huh? I guess you just have to hope that your relationship sounds legitimate! Plus, at this interview, you’ll also have to bring with you an incredibly insane amount of more paperwork and evidence. This stuff includes things like medical records and a recent examination demonstrating your current health, evidence of financial support (I-134) that proves that your partner will never become a financial liability on the U.S., more evidence of the relationship’s validity, more photos and, of course, payment of all the fees involved. And again, even after all this, the government can still ask for MORE. Waiting for all of this to come through can take anywhere from a few weeks to a few months.. or a year. So let’s say after all this work, the visa is approved and your partner can now come and marry you in the U.S. When they show up and go through customs, there is still the possibility that they are not granted admittance into the country. Nice, huh? If you can pass go, then you’ve got 90 days to tie the knot or get gone, buzzo! Once that rushed marriage has taken place, you can apply for a green card to become a permanent resident. Yup, more paperwork, more waiting and more gambling. Even if you’ve gotten married, you can’t legally work in the country until you’ve applied for and been granted authorization to do so (I-485). So after you’ve dropped a couple thousand dollars on applications, petitions and forms, you may have tallied anywhere from 6 to 8 months worth of just waiting. Let’s hope that through all that stress, you were still able and excited to plan your wedding to take place in that 90 day time block!

What’s more is that while you’re waiting for your significant other to be able to move to you and be with you for good, you put your visa acceptance at risk if you plan any long visits to see each other during the waiting period. Why? Well, you have a love interest in the country and you’ve already expressed a desire to stay with them, so who’s to say you won’t just pop over for a visit and then never leave? Can’t have that! That’s illegal immigration!

So after I became frustrated and concerned that I couldn’t personally meet the threshold of the minimum income requirement to prove financial stability, and how the wait time was anywhere from half a year to 8 months, I turned to see if UK immigration was an easier process. Although very similar in terms of the process, I found that the red tape was a little looser and more flexible. Financial requirements aren’t as rigid and allow for more options, the paperwork and applications are processed and accepted (or denied) in a much quicker time frame (as soon as a few weeks!), and there aren’t fees on fees on fees each time a new form is filled out. However, the process is still just as much of a gamble, still very costly, very demanding and stressful and more or less the same as the U.S. process. The main things that appealed to me were the possibility of moving quicker and the ease of understanding the application process.

So while we wait the required 6 months that is necessary since we both accepted new jobs and need to do so in order to meet the financial requirements for either country’s visa, all I can do is anticipate and prepare as much as possible for the upcoming work involved in getting married. Now you can see why it’s upsetting and difficult to plan your long-awaited for wedding (seriously long) when you’ve got so many other things on your mind! The outside support from friends and family who are genuinely excited for our happiness helps redirect the focus from paperwork to bliss. Nevertheless, as with many things in life, there are naysayers that chime in, and sometimes it seems they’re louder than the cheerleaders. Love found across countries is a seesaw dipping back and forth between pure joy and stress.

And although I wouldn’t trade my fiancé for anything or anyone in the world and I don’t regret saying yes to marriage, I urge you to look at your own situation and learn to appreciate things that you two can do that isn’t a guarantee for others. Be able to look at your relationship and say, “yes, this IS a lucky kind of love” and learn to stifle your complaints about doing long distance or arguing over where you want to live or what have you. There are always ways in which it could be harder and there will always be people out there who may have things a bit more complicated. Love your love and always be grateful. And always remember, through any and all the stress, you’ve always got each other. Together is where you want to be, and do what you’ve got to do to get there. Whatever it takes!