Keep rolling under the stars

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Hi buds! This sure has become a pattern for me, huh? Dripping life updates at a glacial pace. I always apologise or throw up an excuse for why it’s taken me so long to post something new, but really I’m not all that sorry and I don’t have an ‘excuse’. I post when I feel ready to a) share and b) delve into the emotional complexities of the situations I’ve been going through. And at the end of the day, this blog is for me, mostly, and you just get the pleasure of coming along for the ride. So I say: you’re welcome. And also thanks for taking the journey with me. Coming to a cinema near you! Not really, but wouldn’t it sell!?

Truth be told, I’ve been plodding along rather contentedly the last few months. But today is World Mental Health Day, and I’ve been inspired by my colleagues who’ve taken time out of their days to share personal stories of struggle, with tips on how they’ve overcome them. I’ve been exceptionally reserved and introverted at work, keeping all personal details about my life to myself for various reasons. Mainly, I found it incredibly difficult dealing with the day-to-day once my colleagues at my previous job knew about the struggles I was facing. Though they all meant well and logically I was fully aware of this (even in the moment), it became far too painful enduring very personal questions, often uninvited. Once I opened up, it’s like I couldn’t keep anything to myself anymore. My story and my struggle were no longer mine alone, and everyone always wanted to know what was happening. When I left and began my new job, I vowed not to let this happen again, and reasoned the best way to avoid personal discomfort was to shut up and keep to myself. I think I’ve done quite well, though I’m not sure it’s really been as beneficial as I thought. I work with amazing people (hi colleagues!), and I do feel guilty quite often for not letting any of them in.

I genuinely believe talking about things out loud helps make even the scariest of scenarios seem a little bit less daunting. But I’ll tell ya from experience – it sure isn’t easy to start. A constant ripping-off-the-bandage feeling, most often accompanied by unwanted tears. We’re always embarrassed by our tears… why is that?

Anyway. Life. What’s happening? How am I? Well, as I said, I’ve been relatively fine considering most things. I want to attribute this to growth: learning how to better cope, how to respond to my own reactions, talking to people when I need guidance. I realise that I’ve not actually been better, but the improvement in my response and recognition hasn’t gone unnoticed. For example, just the other night I had a panic attack. These are not uncommon for me, and they’re really horrific to experience. I liken it to feeling as if you’re drowning, in quicksand, being fully lucid yet paralysed, in -100 degree chill. It’s awful. But this time, I felt the panic attack coming on, was able to tell my husband just before and he helped me get through it; talking to me, insisting I try drinking water, rubbing my back. Within minutes, I had regained control and was out of the panic attack. It’s the quickest I’ve ever done it, and to me that feels like progress. I’m still the same person, but maybe a better version of myself. It’s taken awhile to get here, though, and a whole lotta courage.

And it’s never really done.

Things have been especially tough for, gosh, an entire year now. My husband’s seemingly ever-evolving medical issues have more or less called the shots on the daily. However he feels is how the day goes. On bad pain days, which are most days now, all responsibilities fall on me. I know he absolutely does not mean for it to burden me and I know it kills him to ask me to do something like get him a glass of water because he simply can’t bear to stand up, and I hate he subsequently experiences two kinds of pain from these situations, but it has been hard for me. I’ve had to literally learn how to cook edible meals or force us both to starve on days he can’t cook. I’ve had to run across the city at the last minute because he needed me for emotional support during a flare up. I had to paint almost the entire flat by myself because he couldn’t muster more than near 10 minutes on his feet. I’ve had to abandon family events to get him home and back in a comfortable space. I’ve become a human WebMD. I’ve been forced to become physically stronger so I’m able to push a man twice my size in a wheelchair. If I’m ill, but he needs me, he comes first without hesitation. I’ve had to watch the love of my life continually suffer, unable to take away his pain. Still. I’m honestly still so exhausted every minute of my life, but I do all of this and more because I want to. Because that’s what love is about: being partners, and helping each other when needed. I do not resent him or blame him for any of this, and he knows that, but he also knows it weighs on me. We do what we can for each other, when we can.

Recently, we’ve learned he’s vitamin deficient, which has caused severe bouts of dizziness and too-many-to-count near-collapses. This deficiency has appeared to cause even more problems with his nerve condition, though doctors haven’t medically linked the two yet. We’ve become so astute to his symptoms, we can’t help but notice the parallels of pain flares and dizzy spells. We wonder how long he’s been so deficient? Was he always? Is this something we missed that could’ve prevented further damage had we realised sooner? Is this why the spinal cord stimulator hasn’t been helping? It’s impossible not to wonder these things, but completely fruitless at the same time. We know this. Yet we still wonder. It keeps me up at night now, despite already having issues with insomnia.

Dealing with this has never gotten any easier. I’ve just gotten better at it. I’ve stopped allowing myself to feel like I’m missing out on something by staying home with him because I want to stay home with him. I don’t get upset when he has to tap out of an activity quickly and asks me to step in because I expect this now. Well, I’ll be honest, some days I do still get upset because it gets hard ya know? But I’m so much better now.  We didn’t choose this life. We didn’t ask for it. We don’t want it. But it’s the life we have. We’re doing our best to make it work for us.

I can say today, with the utmost pride, that my husband has actually been an inspiration to me, despite what he may think sometimes. One day not too long ago, he announced to me that he was done feeling sorry for himself and letting his nerve condition determine his life. And that was it. Though it very obviously still does make most of our decisions for us, he no longer gives CRPS power over him. It’s amazing. He’s gotten so much better at acknowledging the pain, adjusting his actions, and getting on with things. He still wants to go for walks with me even though I know it causes him a great deal of pain. He doesn’t want to miss out on things he genuinely wants to do, and though it took us more than 5 years to get to where we are now mentally and emotionally, I am constantly in awe we’re managing it. He’s excelling at work and still makes it into the office every single day, even though he has to get a cab to and from. He’ll text me in the middle of the work day saying he’s in so much pain he wants to throw up, then after a quick pep talk gets right back to work and never gives up. If you want to know strength, you should meet my husband. He doesn’t make it look easy, but he makes it look achievable in impossible situations. I admire him more than he realises. I aspire to be this strong.

My biggest struggle of late is not being as honest as I can be about my issues with people who care about me. I don’t let anyone in because I find it hard to make them understand what I’m going through. They don’t understand how severe it is. They don’t see it. And as a result, I get angry and incredulous and stubbornly decide I’m done sharing with everybody because they just don’t get it so what’s the point? And when anyone seriously asks me about my husband and how he’s doing, I get emotional every single time. I can’t help it, and I hate it so much that that also prevents me from sharing. But the catharsis can help. I endeavour to try to be more open for my own sake. It won’t happen over night, but if I can claw my way out of a panic attack, then there’s hope for me yet.

There’s hope for all of us, really. We’ve just gotta believe it ourselves.

When you recognise that you will thrive not in spite of your losses and sorrows, but because of them, that you would not have chosen the things that happened in your life, but you are grateful for them, that you will hold the empty bowls eternally in your hands, but you also have the capacity to fill them? The word for that is healing.

Wealth of travel

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Certainly, travel is more than the seeing of sites; it is a change that goes on, deep and permanent, in the ideas of living.

A gypsy is a nomadic individual, commonly described as free-spirited and unattached. Although you’re probably imagining Esmeralda from The Hunchback of Notre Dame, gypsies do still exist today, mostly populating parts of Europe. And although all people have basically adapted and changed to accept a new modern lifestyle, gypsies still remain true to their nomadic heritage. I have never met an individual that identifies as a gypsy, but I’ve met the other extreme: the homebody settler. These are the people who make a home and refuse to leave it or explore the rest of the world not because they’re unable financially or for other legitimate reasons, but because they simply don’t want to. Now, I’m a firm believer that traveling does a person good for many reasons. It broadens your horizons, you get to interact with people who may have different ideals, beliefs, cultures or lifestyles than what you’re used to, you can explore history firsthand and with your own eyes, you can physically separate yourself from the stress that awaits you at home — quite frankly, I can only think of seriously positive reasons to pack up and go elsewhere every once in a while. Perhaps I am entirely biased, being a self-proclaimed nomad in training, but how can you fully understand what is happening around the world if you’re only reading about it or hearing about it from others? There’s no better way to understand than to put yourself there!

There are plenty of lists out there about why you should travel, but there are a few key reasons I think are most important to highlight.

1. Traveling is a learning experience. The act of traveling outside of your comfort zone (metaphorically and literally) forces you to figure things out on your own. You can learn how to read a map, how public transportation works, how to manage your time between flights. You learn these things because you have to in that moment otherwise you might miss the next train! But you also get to learn in a broader way – learning how certain people live and how it differs, learning about the past, learning about world, regional, local issues, learning cultural differences and language. The world quickly becomes your classroom and -gasp!- you’re a willing, eager student now! When you travel away from home, you are opening your mind a little bit more each time and learning and changing all the time. Heck, you might find yourself jumping ship from ideas you once held firm simply because travel opened your mind to other opinions. Trust me, it happens!

2. Traveling is good for your health. How many times have you gone on vacation and never left the hotel room? Never? Exactly! When you go somewhere away from home, you’re much more likely to be active and constantly on the move. Sightseeing, hikes, walking around famous shopping centers for hours – all of these things keep you active, and when you’re excited about something, those good chemicals start flowing in your brain! We all know about the scary research about desk jobs and how harmful they can be to your health when you’re sitting for long periods of time, so use that as your excuse to pack your bags and get out for a while. Besides its positive effects on medical health, traveling can also do wonders for your mental health. Shred the stress, let down the barriers and accept the exciting act of adventuring. It’s liberating!

I expected my list of reasons to travel to be much longer than two reasons, but quite frankly, I think that’s plenty. We’re encouraged to travel a lot when we’re young, but I don’t think age matters. The only reason we’re told this is because when you’re young, you have less responsibilities and more free time. However, I don’t think it matters when you go so long as you do go. It’s never too late to learn and grow. There are no excuses that should permanently thwart your ability to travel. If you don’t have money, start saving. If you don’t have time, make time. If you don’t have a plan, get creative. If you’re not uncomfortable, you’re probably not growing. So don’t be afraid of having to bunk down in a hostel in Europe because those scary tales about hostels being gross, dingy and unsafe are all just that — tales! And even if you do wind up in a less than conventional situation, imagine how fun it’ll be to tell that story later on? We learn as we go, but if you’re standing still, you probably won’t learn as much. Just go. You’ll be glad you did.

I haven’t been everywhere, but it’s on my list.