We all march on…

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I’m just going to slide into this blog post acting as if it’s only been a blip in time since I’ve last posted. It’s okay to start this one out on a lie, yeah? Great, glad we’re in agreement there. Moving swiftly along…

Hi buds! Can you believe it’s 2019 already? I can’t! OK, great. Chit chat – done!

Life sucks. Pardon the melodrama here, but honestly it’s become such a drag lately I genuinely feel like all I ever do is whine and complain and I hate it. I’ve wanted to write about it for so long, but I felt like if I did, I’m just painting myself as this world-class complainer who can never see the good side in life. I don’t want to be that person in the slightest, so instead, I just shut up. But that doesn’t help me emotionally, and it certainly doesn’t help anyone else who cares about me and wants to help. So despite still having reservations about writing this post, here I am. Doing it anyway! *insert awkward grimacing face here*

The last you heard from me, I was talking about my husband’s vitamin deficiency. Plot twist! Turns out, that was never the problem. Also turns out, nobody knows what is the problem. Sound familiar? We’ve done this song and dance so many times, it’s almost weirdly expected now. We’ve been in and out of the hospital the last six months – the emergency department a few times – test after test, waiting for someone to find a lead and bring us closer to an answer to the problem. I’ve been having flashbacks to the time we had to do all this before his CRPS diagnosis, and it is honestly heart-wrenching (and unbearable) remembering it took years of suffering before a doctor diagnosed him. Can I handle that again? Can he? And even now, not all doctors agree that he does, in fact, have CRPS. Every doctor seems to have a differing opinion, but I guess that’s just the nature of a syndrome, eh? In any case, this was never a place I expected us to be back in… ever, let alone this soon after having just rode this crazy train to CRPS land. I want off the damn train.

Every day at work, someone asks me how I’m doing. It’s a natural, casual question, not intended to be loaded in any way. For the last six months, my answer has literally been the same no matter who asks: I’m tired. I keep joking that exhaustion is now just a part of my overall personality, but in my head I do kind of feel like it has overcome me as a person and I’m incapable of being or acting any other way. It’s exhausting being this exhausted! I find myself digging back through my photo archives, reminiscing about years before, wishing I hadn’t taken such a carefree life for granted now that I’ve learned how overwhelming it’d all become. Then the guilt strikes, hard, in waves, and I’m chastising myself for being so negative. My thought patterns are wildly unpredictable, and I can’t even keep up with myself most days. So, I keep it simple when people ask. I’m just tired, and leave it at that.

I’ve mentioned before that I often approach a new year by reflecting on the one that’s just gone, to shed myself of those feelings to begin anew each year. Most of 2018 wasn’t all too bad. Health-wise, my husband wasn’t great the majority of the year, but it had become our new normal and we were just living with it. I felt lonely and isolated a lot, but lacked the motivation to do anything about it. But toward the end of the year, the feelings of pride I had for handling the difficult life the universe crafted for me with grace were quickly replaced with intense fear, uncertainty and crippling anxiety. As his health degraded and new symptoms were emerging, we were absolutely gripped by what was happening. I more or less blacked out from September onward, unable to think of much else apart from his health and what I could or should do to help fix it. Every moment of my time was spent worrying about him, whether he was around me or not. Not only did the new symptoms present more problems going about our ‘normal’ lives, but they seemingly made previous, regular symptoms worse.

But when Christmas finally rolled around, he was starting to feel a little better, and since medical tests hadn’t found anything still, we thought maybe we were in the clear. A fluke, surely. He got back to feeling more positive, laced up his running shoes and stared his pain condition directly in its non-existent face; running each weekend brought him pain, but also joy. The thing that he loved most before the nerve condition turned up uninvited. He was doing it again (!!), slowly and very carefully, but I could see his pure joy and god, how fulfilling that is to witness. Short lived, of course. Isn’t it always?

A few months later, the symptoms were back: extreme dizziness, blurry and/or double vision, intensified pain, localised unintentional muscle contractions, insomnia. A change in diet had improved his gastro symptoms, but nothing else. Blood tests still revealed no abnormalities. I think I took it hardest at first. I felt foolish and naive – how dare I think the issue resolved itself overnight? Haven’t I learned anything in this journey so far? How could I let him down by not being the pragmatic one? I was livid. At myself, at this mystery illness, at the universe. Why couldn’t I help him? It all feels so unfair and I can’t understand why we don’t deserve a break. It’s hard. Every day I’m fighting my own emotions, it’s no wonder I’m this exhausted.

My resolution this year was to be more sociable and make more friends. One thing that makes dealing with my life so difficult lately is that I genuinely do not have friends to help me escape – my mind, the situation, my life (sometimes). Especially in my new country. I don’t mean that to be cruel or dramatic or insensitive to the people who are in my life, but to be completely honest, I do not have anyone who regularly checks in on me without me having to prompt it first. Maybe this is my fault. I can be very closed off and I’ve often backed out of plans with others (because, this life), so I can totally see how I’ve made myself unapproachable in general. Nevertheless, it is hard seeing my husband’s phone light up with messages from friends and colleagues simply checking in, asking if he wants to grab a drink, shoot the breeze – all because they want to. He’s got friends fairly regularly asking him to do things and he’s the one with the disability, but I’ve often been sat at home alone waiting for him to return (and worrying if he’s okay). Don’t get me wrong, I’m thrilled my husband has people in his life like this. It relieves some of the burden and guilt I feel when I think I’m not being or doing enough for him. But still, I’m jealous. I wish I had people who wanted to take my mind off the things troubling me most! And boy, is it hard to make friends as an adult. In any case, I decided I didn’t like feeling so lonely and pathetic, so that’s why I endeavoured to put myself out there more often – social anxiety be damned!

It’s slow going, I’ll admit. I’m still resentful that I’ve seemingly been unable to pick people to stay in my life of their own volition. I can’t help but feel like there must be something wrong with me for people to forget about me so easily or treat me unkindly. I still struggle to shake this ‘woe is me’ feeling I have so often. But! I’ve started to make new friends. People who have so far been kind enough to reach out on their own accord and invite me to do things, ask me how things are, assure me they’re there to talk or not talk – whatever I want or need at any time. I am apprehensive, at best. I want to trust that opening up to new people will bring in new friendships I crave, but I’m also afraid I’ll lose them just as quickly. My life is so unique to the average 20-something, and I’m hyper aware that none of these people may understand the life of a caregiver. Because that’s what I am, really. But I am still trying and being more social and slowly opening up to new people. It is likely I’ll get hurt. I know this – such is life. But if there’s even a small chance that one of these wonderful new people in my life will stick around, then it makes it all worth it. We need people. And I need people to help remind me that I’m still young and have a whole, exciting life ahead of me. To remind me that I am more than this situation. That my personality isn’t ‘tired’. That I’m someone who needs care and attention too, sometimes. I very often forget this down in the muck that is this medical nightmare. So to those of you reading this who’ve been so kind and understanding toward me – even without knowing my whole story yet – I thank you. You have no idea how huge of an impact you’ve already had on my life, and moreover, I hope you stay.

This isn’t an easy life. I’ve never foolishly believed it would be, but I never could’ve guessed I would experience such trauma in such a short span of time. Word on the street is that I’m strong and resilient, but I almost never feel this way. I’m proud of myself for sticking my neck out when I’ve been in need, though. This is something I’ve never been known to do or particularly good at, but I’m finding life a little easier to handle knowing I’ve got a bit of extra help on the outside. Even if that help simply comes in the form of a smiling face willing to take me away from my own thoughts for a bit. Every little bit helps.

So I end this post with one request: always be kind. And when you’re feeling least like wanting to be kind, be even kinder. You never know who is so desperately relying on your kindness just to get through the day.

Go as long as you can, and then take another step.

Stave off stress

Keep calm & carry on

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In my very limited observations, I’ve noticed that many 20-somethings appear to be overwhelmingly stressed more often than not. From personal experience, I can say that I’ve certainly had my fair share of anxiety and panic attacks, have broken out with stress pimples, found myself lying awake at night incapable of falling asleep and many times, I just exhaust myself with worries. If I’m doing these things and I’m aware of it, I’m sure there are many others in similar positions. And although there are times when it feels like stress is running my life, it’s important to understand that there are easy ways to relieve stress. Your twenties are massively transitional – permanently moving out of your parent’s house, landing a full-time job, paying bills and loans off, looking for a partner to settle down with – a whole lot changes very quickly. As we celebrate each birthday during our teens, we’re painfully aware of the changes that are looming ahead in our twenties, but no amount of mental preparation can truly prepare you for what’s in store. So that’s why I did some research involving stress in young adults. It may not be something I can change, but it’s something I can learn to manage much better.

Stress is defined in the dictionary as, “a state of mental or emotional strain or tension resulting from adverse or very demanding circumstances.” As a recent graduate, I can certainly relate to the feeling of facing demanding circumstances frequently. Not sure if you’re stressed? Check out some of the symptoms here. Chances are, if you’re nodding your head yes to many of these symptoms, the stress monster has you in its grip. But if you find yourself hyperventilating before an upcoming exam that you don’t feel prepared for, don’t even take the time to look up your symptoms. I can tell you right now, you’re totally stressed out and you need to find your center again!

As a veteran anxiety attack victim, I’ve learned ways to calm myself down quickly before I feel like I’ve completely lost control. Been there too? Then let’s toss out some plans of attack to keep the enemy at bay.

When I start feeling overwhelmed, one of the first things I do is step away from what I’m doing and make myself a cup of tea. Many teas are said to actually help calm you down, although I can’t say it’s foolproof. I’ll brew a cup of chamomile or peppermint tea, and while I sip, the only thing I allow my mind to think of is how the tea tastes. You’d be amazed at how a few minutes can keep your anxiety in check. Plus, staying hydrated is definitely helpful too. Now, I’m a big coffee drinker and I’d pick coffee over tea almost any day, but caffeine definitely does not help in moments of stress. Tea is your best bet. But if you don’t dig tea and still want the calming benefits of the scent of chamomile or something similar, pop out to the store and buy a scented candle or two and light those babies up! The smell can just as easily calm you if you’re making sure to stop and take a moment to focus on the smell of the candle and nothing else.

If tea doesn’t help on its own, I’ll flip on some soothing classical music. Personally, I prefer classical piano with Beethoven’s “Moonlight Sonata” (Piano Sonata No. 14 in C♯ minor) as my go-to favorite. Music has been said to help individuals deal with stress, pain and other related ailments in many research studies, so it’s a pretty solid option. If classical music isn’t your thing, turn on your favorite pop songs from the 2000s and sing along. That’ll help reduce your stress levels too!

Maybe a few minutes of distraction isn’t enough for you to calm down. If that’s the case, another trick of the trade is some old-fashioned exercising. I’m not a huge fan of any kind of exercise, but it gets those endorphins pumping and can change your mood real quick. While you’re singing along to that pop song, get up and move too! Or get flexible with yoga or pilates, lift weights, do push-ups or sit-ups, jog around the block or if all of this is way too intense for you, slip on your tennis shoes and just go for a brief walk. Removing yourself from the environment where you were feeling the most stressed does wonders.

A few other things that may help fight off stress and anxiety are breathing exercises, massages, participating in a specific hobby like crafting, playing a game, watching funny videos (laughter is the best medicine!), playing with or petting a dog, cooking, or even allowing yourself to have a good cry can be amazingly cathartic. What’s important is that you find a way to distract yourself from what’s bothering you, and you’ll have to find what works best for you on your own.

So no matter what you do, at least make sure you’re doing something to minimize the stress. If you just let it consume you, chronic stress and anxiety have the ability to seriously impact your health. So be proactive and don’t get too caught up in strife and worries. Help yourself when you notice that you’re faltering or ask for it if you’re unsure of what to do. And just as good ol’ Walt Disney once said, “Why worry? If you’ve done the very best you can, worrying won’t make it any better.”

Cheers to a happier, healthier you!