Tag: attitude

To smell the flowers

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It’s been a funny few months. I say ‘funny’, but I don’t mean ‘haha’ funny. More like a peculiar, confusing funny. The ‘I’ll laugh otherwise I’d cry’ kind of funny, although I’ve still admittedly shed quite the volume of tears over the past few months (though some that know me would say this isn’t necessarily unusual for me). The point is, I’ve run the gamut of emotions in a condensed amount of time, and it’s left me feeling really weird lately. An emotion I can’t quite pinpoint. How annoying. 

It’s been understandably difficult dealing with my husband’s evolving medical issues, though I can say after more than 6 years of relentless, terrifying situations, I genuinely feel like we face these issues with much more pragmatic attitudes than ever before. It never stops being terrifying and emotional, but I’m immensely proud of the way we’ve faced recent events and pushed ahead with logic. Though we’d give anything (literally anything!) not to have to deal with this crap, in a twisted way, I’m grateful that we, as individuals and as a pair, have become better versions of ourselves off the back of what we’ve experienced. Just the fact that I can type this now shows that I’ve grown a lot as a person – that I can take a step back from the chaos and analyse it logically. And better yet, that I can admit that there’s any glimmer of a silver lining in the shitty cards we’ve been dealt in life shows how far I’ve come. Every cloud, eh?

As a quick update for those following this insane medical journey: we’ve found a private neurologist in the last few months who my husband describes as ‘the best doctor’ he’s ever had. And considering his medical history, you can be damn sure he’s seen plenty, so this judgment points to good things. The doctor treats us like human beings (gasp!), has a sensible approach to health backed by science (not always a guarantee these days) and genuinely seems to want to help. This is the first time we’ve not felt like lepers in a doctor’s office. It’s still early days in my husband’s current treatment, but we’ve got a course of action… and then several other courses of action planned should the first one not pan out. So in short: we’re happy and optimistic – something we weren’t feeling at the start of the year. Fingers crossed the trajectory continues this way.

Whilst all this was going on in the background, as is usual fashion for me, a tornado was wreaking havoc in other parts of my life too. I’m still waiting for the reality TV crew to jump out from their hiding spots, but until then…

The company I work for went through some major internal structural changes recently that left my entire team facing redundancy. It happened very quickly – we were told our roles were being made redundant, proposed new positions were explained, those who wanted to stay had to interview for these very few new open roles, then we were told if we were successful or if we were out the door. All within 30 days. As you can imagine, this was incredibly stressful and emotional. I went through every stage of grief, no lie, and I for sure had severe moments of ‘why now, why me?!’. Nevertheless, I pushed through the best I could, and I attribute that both to the strength I’ve found in past life experiences, as well as to the people who helped prop me up and cheer me on throughout the process. Though I’m grateful I landed a new role at the company I love so much, I’m simultaneously grieving the loss of many fabulous colleagues and friends. It’s a complicated time, gang.

I went on a much-needed holiday, then came home and immediately fell very ill for a very long time. I faced conflicts with people I love. I made distant future plans knowing life could change by then. I went to the doctor for myself – twice! I’ve been let down. I’ve been surprised. I’ve been socially awkward and shockingly social.

These last few months have forced me to think about my own wants and needs much more critically, and to make very hard decisions quickly. I’m not a fan of making quick decisions on a normal day, so it’s been particularly difficult of late. I’ve had way too many anxiety attacks to count, but whilst they’ve been frequent, they’ve been brief. I’m slowly learning how to regularly claw my way out of these moments (with obvious external help from those around during an episode – thank you!), and so I say again: every cloud.

I’ve made regular use of the ‘block’, ‘unfriend’ and ‘hide’ functions on social media platforms, protecting myself from toxic people who trigger me. I thought this would be hard to do – I don’t like the aggressive feeling of doing this – but I can honestly say that it’s helped me so much more than I could’ve expected. I’ve also made use of the word ‘no’. Little miss ‘too-afraid-to-disappoint-people’ and ‘gives-everyone-10-billion-second-chances’ has given firm nos to negative influences who’ve tried to reach out. Who am I?! I won’t say this was easy to do in the moment, but after doing it once and realising I was better off for it, I find myself becoming much more comfortable looking after myself and not feeling guilty for doing it. Guess this is growing up, ya’ll!

I don’t think I’m feeling optimistic or particularly positive, but the main thing is that I’m trying to. It’s taken me many, many years, but I now feel like it’s okay to put myself first. This doesn’t mean that I care less about anyone else, but rather I care so much that I want to ensure I’m putting the best version of myself forward first. Not the tired, broken down version I previously offered. I’m not saying I’m killing the game over here – I still have bad days where I just can’t get a grip on my anxiety and collapse into a ball of erratic, irrational emotions. But I can say I don’t feel like a failure on these days anymore. I am allowed to feel broken. I am allowed to be angry and resentful about the cards I’ve been dealt. I’m allowed to have ‘woe is me’ days. But above all this, I know I’m allowed to be happy and continue to seek happiness. I’m allowed to change my mind and my mood. I’m allowed to be! It’s crazy that I’m only just now coming to this realisation, but I’m very glad I did.

And now, I think I’ll take some time to stop and smell the flowers. It’s a crazy life, folks. But there’s always a little beauty to see. You just gotta know where to look for it.

We all march on…

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I’m just going to slide into this blog post acting as if it’s only been a blip in time since I’ve last posted. It’s okay to start this one out on a lie, yeah? Great, glad we’re in agreement there. Moving swiftly along…

Hi buds! Can you believe it’s 2019 already? I can’t! OK, great. Chit chat – done!

Life sucks. Pardon the melodrama here, but honestly it’s become such a drag lately I genuinely feel like all I ever do is whine and complain and I hate it. I’ve wanted to write about it for so long, but I felt like if I did, I’m just painting myself as this world-class complainer who can never see the good side in life. I don’t want to be that person in the slightest, so instead, I just shut up. But that doesn’t help me emotionally, and it certainly doesn’t help anyone else who cares about me and wants to help. So despite still having reservations about writing this post, here I am. Doing it anyway! *insert awkward grimacing face here*

The last you heard from me, I was talking about my husband’s vitamin deficiency. Plot twist! Turns out, that was never the problem. Also turns out, nobody knows what is the problem. Sound familiar? We’ve done this song and dance so many times, it’s almost weirdly expected now. We’ve been in and out of the hospital the last six months – the emergency department a few times – test after test, waiting for someone to find a lead and bring us closer to an answer to the problem. I’ve been having flashbacks to the time we had to do all this before his CRPS diagnosis, and it is honestly heart-wrenching (and unbearable) remembering it took years of suffering before a doctor diagnosed him. Can I handle that again? Can he? And even now, not all doctors agree that he does, in fact, have CRPS. Every doctor seems to have a differing opinion, but I guess that’s just the nature of a syndrome, eh? In any case, this was never a place I expected us to be back in… ever, let alone this soon after having just rode this crazy train to CRPS land. I want off the damn train.

Every day at work, someone asks me how I’m doing. It’s a natural, casual question, not intended to be loaded in any way. For the last six months, my answer has literally been the same no matter who asks: I’m tired. I keep joking that exhaustion is now just a part of my overall personality, but in my head I do kind of feel like it has overcome me as a person and I’m incapable of being or acting any other way. It’s exhausting being this exhausted! I find myself digging back through my photo archives, reminiscing about years before, wishing I hadn’t taken such a carefree life for granted now that I’ve learned how overwhelming it’d all become. Then the guilt strikes, hard, in waves, and I’m chastising myself for being so negative. My thought patterns are wildly unpredictable, and I can’t even keep up with myself most days. So, I keep it simple when people ask. I’m just tired, and leave it at that.

I’ve mentioned before that I often approach a new year by reflecting on the one that’s just gone, to shed myself of those feelings to begin anew each year. Most of 2018 wasn’t all too bad. Health-wise, my husband wasn’t great the majority of the year, but it had become our new normal and we were just living with it. I felt lonely and isolated a lot, but lacked the motivation to do anything about it. But toward the end of the year, the feelings of pride I had for handling the difficult life the universe crafted for me with grace were quickly replaced with intense fear, uncertainty and crippling anxiety. As his health degraded and new symptoms were emerging, we were absolutely gripped by what was happening. I more or less blacked out from September onward, unable to think of much else apart from his health and what I could or should do to help fix it. Every moment of my time was spent worrying about him, whether he was around me or not. Not only did the new symptoms present more problems going about our ‘normal’ lives, but they seemingly made previous, regular symptoms worse.

But when Christmas finally rolled around, he was starting to feel a little better, and since medical tests hadn’t found anything still, we thought maybe we were in the clear. A fluke, surely. He got back to feeling more positive, laced up his running shoes and stared his pain condition directly in its non-existent face; running each weekend brought him pain, but also joy. The thing that he loved most before the nerve condition turned up uninvited. He was doing it again (!!), slowly and very carefully, but I could see his pure joy and god, how fulfilling that is to witness. Short lived, of course. Isn’t it always?

A few months later, the symptoms were back: extreme dizziness, blurry and/or double vision, intensified pain, localised unintentional muscle contractions, insomnia. A change in diet had improved his gastro symptoms, but nothing else. Blood tests still revealed no abnormalities. I think I took it hardest at first. I felt foolish and naive – how dare I think the issue resolved itself overnight? Haven’t I learned anything in this journey so far? How could I let him down by not being the pragmatic one? I was livid. At myself, at this mystery illness, at the universe. Why couldn’t I help him? It all feels so unfair and I can’t understand why we don’t deserve a break. It’s hard. Every day I’m fighting my own emotions, it’s no wonder I’m this exhausted.

My resolution this year was to be more sociable and make more friends. One thing that makes dealing with my life so difficult lately is that I genuinely do not have friends to help me escape – my mind, the situation, my life (sometimes). Especially in my new country. I don’t mean that to be cruel or dramatic or insensitive to the people who are in my life, but to be completely honest, I do not have anyone who regularly checks in on me without me having to prompt it first. Maybe this is my fault. I can be very closed off and I’ve often backed out of plans with others (because, this life), so I can totally see how I’ve made myself unapproachable in general. Nevertheless, it is hard seeing my husband’s phone light up with messages from friends and colleagues simply checking in, asking if he wants to grab a drink, shoot the breeze – all because they want to. He’s got friends fairly regularly asking him to do things and he’s the one with the disability, but I’ve often been sat at home alone waiting for him to return (and worrying if he’s okay). Don’t get me wrong, I’m thrilled my husband has people in his life like this. It relieves some of the burden and guilt I feel when I think I’m not being or doing enough for him. But still, I’m jealous. I wish I had people who wanted to take my mind off the things troubling me most! And boy, is it hard to make friends as an adult. In any case, I decided I didn’t like feeling so lonely and pathetic, so that’s why I endeavoured to put myself out there more often – social anxiety be damned!

It’s slow going, I’ll admit. I’m still resentful that I’ve seemingly been unable to pick people to stay in my life of their own volition. I can’t help but feel like there must be something wrong with me for people to forget about me so easily or treat me unkindly. I still struggle to shake this ‘woe is me’ feeling I have so often. But! I’ve started to make new friends. People who have so far been kind enough to reach out on their own accord and invite me to do things, ask me how things are, assure me they’re there to talk or not talk – whatever I want or need at any time. I am apprehensive, at best. I want to trust that opening up to new people will bring in new friendships I crave, but I’m also afraid I’ll lose them just as quickly. My life is so unique to the average 20-something, and I’m hyper aware that none of these people may understand the life of a caregiver. Because that’s what I am, really. But I am still trying and being more social and slowly opening up to new people. It is likely I’ll get hurt. I know this – such is life. But if there’s even a small chance that one of these wonderful new people in my life will stick around, then it makes it all worth it. We need people. And I need people to help remind me that I’m still young and have a whole, exciting life ahead of me. To remind me that I am more than this situation. That my personality isn’t ‘tired’. That I’m someone who needs care and attention too, sometimes. I very often forget this down in the muck that is this medical nightmare. So to those of you reading this who’ve been so kind and understanding toward me – even without knowing my whole story yet – I thank you. You have no idea how huge of an impact you’ve already had on my life, and moreover, I hope you stay.

This isn’t an easy life. I’ve never foolishly believed it would be, but I never could’ve guessed I would experience such trauma in such a short span of time. Word on the street is that I’m strong and resilient, but I almost never feel this way. I’m proud of myself for sticking my neck out when I’ve been in need, though. This is something I’ve never been known to do or particularly good at, but I’m finding life a little easier to handle knowing I’ve got a bit of extra help on the outside. Even if that help simply comes in the form of a smiling face willing to take me away from my own thoughts for a bit. Every little bit helps.

So I end this post with one request: always be kind. And when you’re feeling least like wanting to be kind, be even kinder. You never know who is so desperately relying on your kindness just to get through the day.

Go as long as you can, and then take another step.

Thicker than water

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Some people survive and talk about it. Some people survive and go silent. Some people survive and create. Everyone deals with unimaginable pain in their own way, and everyone is entitled to that – without judgement. So the next time you look at someone’s life covetously, remember: you may not want to endure what they are enduring right now, at this moment, whilst they sit so quietly before you looking like a calm ocean on a sunny day. Remember how vast the ocean’s boundaries are. Whilst somewhere the water is calm, in another place in the very same ocean, there is a colossal storm.

This year has been simultaneously remarkable and harrowing. I always refer to my life as a rollercoaster because that’s how it’s often felt with the ups and downs and the loopty-loops. It still really does. And now as I sit here halfway through 2017, I’m quite thunderstruck just absorbing the fact that half of this year has already passed. Time is slipping through my fingertips at a rather alarming rate. Some days, it’s unsettling. Others, I’m grateful for it. Life is a balance, isn’t it?

I recently made a surprise trip stateside to see my family. Namely, I went back to see my grandparents who’ve not been in good health lately, as I’ve previously mentioned. When I was initially planning to go, I wanted to write about my week when I returned to London because I thought it’d be cathartic in some way. I’ve been back a week now, and my opinion has changed slightly. Part of me wants to spill every little detail about my week and commit it to ink, but the other part of me wants to keep it close, to myself and those closest to me. As a writer, the latter bit stresses me out a little. I’ve been relatively open about massive issues I’ve faced in my life, especially recently, and I do genuinely find catharsis when I put my feelings into writing. But my week in Cleveland was special, emotional and one I’ll forever hold dear. Because it feels cruel to write a blog and mention something as dramatic as a surprise trip 4,000 miles away and not say a peep about it, I will say this:

My week home was heart-warming, exhausting, happy, sad and very, very fulfilling. My grandparents and aunt were so incredibly surprised and thrilled to see me and spend time with me, and that’s all I ever wanted from the trip: to make them happy and aware that I was willing to drop everything in a heartbeat to be there for them. And I was. I was there. And I will be again if and when they want or need me to be.

It was not a holiday. It was not time off. I woke up every morning at 5am because that was 10am UK time and I worked a full day. Every day that week. Then by 1pm, the UK workday was over so I’d get ready for the afternoon and spend it with family. In the evenings, I’d squeeze in a few hours to see friends. I’d fall into bed every night absolutely shattered, mostly running on adrenaline, which seems to be my only fuel source this year. I rolled back into London on a Sunday morning and rocked right back to work that Monday. It was very hard, but I don’t regret doing it. It was the right time for me to show up, and I’m so, so glad I did. However, I have no idea how I’ll ever top that kind of gift! Think I set the bar too high for myself…

I still don’t know what’s next in this long saga of continuous chaos. Some days I’m optimistic and strong and cheery, other days I’m a moody, grumpy lump on a log for no discernible reason. Some days I’ll talk my friends’ ears off about what’s bugging me or what I’m excited for, and other times I force them into an awkward exchange with lots of one-word answers and uncomfortable silences. I don’t know how people are meant to handle the things I’ve been going through this year, and I don’t know that there’s really a guidebook for any of it either. Day by day I take things as they come, and meet them with whatever mood happens to me. I never have proof of my strength and I often feel like a wimpy, whiny baby, but I’ve been told that I’ve been doing okay so I take that as a success and keep moving forward.

My life isn’t better or worse than anyone else’s. While it’s hard not to feel like the world owes me something, I want to believe that everything happens for a reason. Maybe this year is a year for hard-earned lessons that will prep me for whatever 2018 has coming my way. I don’t know. I can’t know for sure. But what I do have now that I didn’t have before is experience. I’ve learned way more in these last few months – about myself, life, humanity – more than I ever could’ve imagined I would.

This life is precious. Although it’s cliché, you never know what tomorrow may bring. I do what I can in a day, and then I’m done with it. I make time for what I want and need, and do my best now to strike a better balance between work and my personal life. Work still seeps into my personal life, but it is a choice and not a requirement. I am grateful to have friends both here and in my hometown, all of whom show their support for me when I need it. Life isn’t about merely surviving – it’s about living, right? That’s what they say.

So I guess this post is my thank you to everyone who’s been following my life thus far, offering tid bits of ‘you’re doing great!’ and ‘thinking of you’ comments here and there. I imagine from the outside looking in it’s been pretty dramatic and entertaining, so I can’t blame you for wanting to know how I am and how things are going. Thank you for caring. Thank you for striking up conversations even if I look unapproachable. Thank you for spending time with me even on the days I’m not very communicative. Thank you for being constant beacons of light when I’ve not even realised I was in the dark. I am so very grateful that even on days I feel like I’m dealing with this life alone, I’ve never actually been alone. It’s been quite the adventure so far, hasn’t it? Here’s hoping for tomorrow…

The edge

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The day doctors confirmed my grandfather had cancer, I cried in the bathroom at work, finished off the following hour in the office, then left early, unable to truly focus. I went straight home to buy him tea. A few weeks prior, my mom mentioned my grandpa really enjoyed tea I had given he and my grandmother, which I purchased here in London, but I couldn’t remember what type of tea it was to save my life. So I did what any sensible person would do: I spent $100 on different varieties of tea and shipped it to them. That’s right, my first instinct upon hearing my grandfather’s diagnosis was to send him tea.

Even thinking about it now, a few weeks on, I can’t help but think how strange of a reaction that was. But in my head, it was an action. It was something I could do to help from afar, albeit a very small action with seemingly little impact. All I could think was ‘what will make my grandparents smile during such a traumatic time?’. Hundreds of tea bags would do the trick, I thought. I think it did… but it still doesn’t feel like enough. Which begs the question – what would be enough?

For those of you following the snippets of my life that I serve up via blog post, you’ll know I’ve been dealt a number of awful cards in my time on this earth. Just in the last year alone, I’ve faced a slew of horrific ordeals and hovering unknowns. I thought I was closing the book on the majority of these issues when my husband had life-changing surgery about 8 weeks ago. It’s been a slow recovery, but he’s on the mend and his quality of life has sky-rocketed into positivity. I know now, however, that I was not closing the book, but simply a chapter, as I face another seriously stressful and scary situation happening to yet another person I love.

I’ve been in this situation before: far away from someone I care about dealing with a scary health problem. It doesn’t get any easier. But whether I’m there or here, it still impacts me the same. I’m scared and I want to help, but I’m hyper aware that there really isn’t much I can do. So here I am, continuing on with life as if I don’t have something else heavily weighing down my conscience, feeling helpless and isolated.

I’ve kept this subject quiet for quite some time. My grandfather fell ill a few months ago, and that’s when the subject of cancer came up. But cancer is horrifying. I refused to believe it was even a possibility until I received categoric confirmation. I couldn’t let it impact my work life because my situation with my husband had already interfered heavily. I couldn’t bear having to admit to my superiors or colleagues that, yes, here I was again dealing with yet another medical nightmare. But more importantly, I didn’t want anyone to pity me. I know I don’t give myself much credit, but I know I’m strong. I’ve handled terrible situations with a level of grace I’m still not sure is my own, so surely I could put my brave face back on to get through another workday.

My grandfather is the toughest guy I know. I’ve always said he’s too stubborn to die, and I still very much believe it (hope you’re reading this, Papa!). I’m so glad he’s got my grandmother to help him through this journey, despite the scary health issues she’s enduring herself. I fully believe in the power of love, and how this magic ingredient helps so many of us pull through each and every day. I only wish I could be there, in person, to help them both. They’re such an integral part of my life, and I feel like I’m doing them a disservice being thousands of miles away. But here I am.

I don’t want pity and I don’t particularly want to discuss this subject with anyone because it’s still raw… so why the heck am I writing about it, you ask? Well, it’s simple: I want people to understand that we’re all dealing with things behind closed doors. That not everything is as it appears. I beg you to please be kind to people, always, no matter your own circumstance. I can’t count the number of times I’d return home from a rather rough day at work, shouldering the weight of others’ roles plus the mental anguish I was already juggling, collapse into tears and wonder if maybe had I expressed what was happening in my personal life, I’d earn some compassion from others. But I didn’t want to talk about it. I still don’t want to talk about it. I shouldn’t feel like I have to pour my heart out just so people will be nice to me. I was taught to be kind, so why can’t I be granted the same courtesy?

Look, I’m not here to complain. Life has a tendency of kicking you in the teeth, but you still have to get back up to finish the day. I’m the poster child of this! But I’m also not too proud to admit that I’m tired. I’ve not had time to bounce back from my husband’s ordeal, who still has a number of months of recovery ahead of him. Yet here I am, still trucking along, dealing with every little thing the universe throws my way. Not always in the best way perhaps, but I’m getting through the mess the only way I know how.

I don’t know what the future holds. If I’ve learned anything in the last few years, it’s certainly that life has a way of keeping you on your toes. I like to think I’ve navigated the obstacles well, but it’s hard to say. The only thing I seem to have any control over is how I deal with all of this – and how I choose to allow it to affect my life and the people around me. And most importantly, I’ve learned to keep going. I’ve wanted to throw in the towel so, so many times and just crawl into bed and never leave. But I haven’t. And I haven’t stopped laughing or spending time with friends, I haven’t neglected work or failed to help out my husband. I haven’t given up. I won’t give up. My grandparents haven’t, so I think I’ll follow their lead.

Anyone can slay a dragon. Try waking up every morning and loving the whole world again. That’s what takes a real hero.

All forward motion counts

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On my last day of CBT, I spent the full session sitting in my chair sobbing uncontrollably, muttering ‘I’m sorry’ in between gasps for air, ‘I don’t know why this is happening’.

A few weeks before Christmas, I self-referred to a local mental health clinic in an attempt to gain control over my thoughts and to learn coping strategies when things felt like they were spiralling out of control. It was something I’d always thought I should do, but never felt I was ‘bad enough’ to require outside guidance. I’m fiercely independent, and I always want to be able to take care of myself without anyone’s help or input. But as my husband’s condition was worsening and the future was quickly filling up with more and more unknowns, I realised now was the time to admit that I needed help. I genuinely felt like I couldn’t face whatever came next for his treatment unless I was properly prepared. So I signed up for a 6-week CBT one-to-one course (cognitive behavioural therapy), intended to analyse the way I reacted to situations, then work to implement changes to disrupt the negative pattern I had fallen into. It sounded like the perfect thing for me to do: it would be work, but it would come with noticeable results.

I kept it quiet from most everyone. I didn’t want anyone to know that I was working on myself because I didn’t want to admit that 1) there was anything that needed fixing and 2) that it was affecting anything more than myself. To be completely honest, I was so stressed and so panicked and so overwhelmed that it was affecting a lot in my life. My anxiety had gotten so extreme that I wasn’t leaving the house except to go to work, and even there I wasn’t myself. I needed help, but I didn’t need to broadcast it to everyone. I wasn’t ready for that.

So I went home to America for the holidays and tried my best to relax during my time off knowing that when I returned, it was time to get to work. And I did. Every week, I went in for my appointment and talked about how I react to situations and how they’re affecting me and how I thought I could change that. I’m not a therapist, but CBT itself is pretty straight forward. It’s goal-oriented and something you can track progress on paper. Each session I’d walk in with my homework in hand ready to discuss it, and each week I was transparently told how well I was doing. I felt pretty proud of myself, and received the positive affirmations I needed each week to keep me working toward a better me. I was slowly breaking the pattern that I knew played a major role in my recent demise. I was clawing my way back up to the surface each week, and for the most part, it felt pretty damn productive.

On my last day of therapy, I had recently gotten incredibly stressful news about my husband. He was due to get DRG surgery in the coming months, but we hadn’t yet been given a date for the surgery (a type of spinal cord stimulation targeting your dorsal root ganglion nerve bodies at the base of the spinal cord). We were just anxiously awaiting a phone call from the hospital that could’ve literally come any day, which meant most of our life plans were on hold or tentative until we knew what was going on with his surgery. A very tense way to live your life, let me tell you. Anyway, we got that call, suddenly, when we weren’t expecting it in the slightest. But it wasn’t the call that threw me – it was that the hospital called to ask if he could come in for surgery three days later. It’s one thing to know you’re waiting for life-changing surgery, but it’s something completely different when you’re asked to get it done in mere days! However, I thought I handled that experience with ease: I was calm, strategic and gave my husband logical advice. When we finally determined it wasn’t the right time to drop everything for the surgery and we’d rather wait for a later date in which we could plan properly, I hung up the phone feeling proud of myself for handling it like a mature adult. Pre-therapy Tanya would’ve completely crumbled from the stress of the situation, over the need to give the hospital an answer within the hour. Panic would’ve taken over and I would’ve been crying in the bathroom desperately trying to compose myself before getting back to work. But not this time! This time I handled it like a pro, and although I still felt a little jittery from the whole ordeal, I survived and I was able to get back to work comfortably. Or so I thought.

When I eventually had my final therapy appointment, I walked in prepped and ready to tell my therapist how I dealt with a scary, overwhelming scenario like a boss. A ‘look how much I’ve learned already’ show of achievement. I walked in smiling, sat down and started explaining how the situation came up and how I responded to it, and the minute my therapist asked what I would’ve done if my husband had taken the early surgery date… I burst into tears. And they didn’t stop. The entire session. I kept apologising and muttering that I didn’t know why this was happening and I was fine the whole time until I walked in that door and how it didn’t make sense and that I was sorry, sorry, sorry. She told me it was a completely normal, emotional reaction and it just showed how much I cared about my husband, and how that type of worry is and will still be normal. She explained the stress of his medical situation is unique and how I need to stop viewing my tears as weakness. I don’t remember every detail of that appointment mostly because I was utterly embarrassed and surprised at my own reaction. I mostly remember her telling me I was strong and proactive, but that maybe I needed something a little more than CBT and gently suggested I pursue treatment elsewhere. I know she meant well, and I know she’s probably right – I need treatment catered specifically to me and my situation because it’s too, uh, complex, for generic therapy plans. But I couldn’t help feeling like I had failed therapy. I was doing so, so well only to completely lose it on my last day with an emotional reaction I didn’t even know was in me. I thanked her for everything she had taught me along the way, asked her to send me info for further treatment and took my sobbing self to the bathroom to cry in peace. My husband eventually had to meet me on the walk home since it became evident I wasn’t going to compose myself any time soon.

At the end of all this, we did get an appointment date through for his surgery. It’s in a few weeks time, actually. We were able to go away on holiday beforehand to get some sun and proper relaxation before life as we knew it will change. I haven’t yet signed up for new therapy. I still don’t know if I will, and I imagine it hinges on whether or not this surgery goes well. But for now, I’m applying what I have learned so far: I don’t know what will happen after this surgery. I don’t know if it will be the saving grace we’re after or if it’ll send us back to square one. But I do know that these ‘what ifs’ are not helpful, and we’ll tackle the outcome when that day arrives. And I’m still trying to remind myself that I am strong and despite feeling weak more often than not, I have every right to be proud of how far I’ve come so far. This stuff is absolutely terrifying. I wouldn’t wish any of this on my worst enemy. I know I’m going to be emotional when his surgery date arrives, but I know I’ve got some tools to help myself this time around. And if I find myself falling short – I have options. That, in itself, is empowering. There’s no reason I should ever feel I’m going this alone. And it’s about damn time I realised that.

You’re looking for the explanation, the loophole, the bright twist in the dark tale that reverses your story’s course. But it won’t reverse – for me or for you or for anyone who has ever been wronged, which is everyone. Allow your acceptance of the universality of suffering to be a transformative experience. You do that by simply looking at what pains you squarely in the face and then moving on. You don’t have to move fast or far. You can go just an inch. You can mark your progress breath by breath.

Finding home

12241591_10153788546021350_2546363106105606442_n-1It’s been six months since I’ve officially relocated to the UK, and to say it’s been a rollercoaster ride is a slight understatement. I anticipated an adjustment period, considering the fact that I was leaving behind everything familiar and opting for complete immersion into a new home, new environment and new people. But despite having lived in the UK for a few months in the summer of 2012, it was far more destabilising this time around. I think the fact that this move was permanent contributed to that emotion. But six months in, I think I’ve found my centre at last… and the ability to write as if I were a native Brit.

Anxious excitement dominated my first month or two, which makes sense because I was eager to close the gap and be here, but I had no idea what life would be like once I actually moved. That realisation started to seep into my brain toward the end of my second month, beginning of the third. My excitement quickly turned serious when I began looking for work to fill my free time and become a contributing member of society. I began this stage with apprehension, knowing full well how difficult it was finding the right job back in the states after graduation and worrying I’d find a similar struggle here. Now that it’s over with and I’ve found work, I feel pretty confident saying it was easier and quicker to find a job than it was a few years ago, but it certainly felt like a never-ending, soul-crushing experience.

It was about when I’d sent out around twenty job applications and the rejection emails started coming through that I felt myself slipping into a darker mind-set. I swiftly went from “I’m going to get a job!” to “I’m never going to get a job,” which, as you can imagine, wasn’t a fun thought train to ride. For the next few months, I was a wretch to be around (shout out to my amazing husband for putting up with this nonsense!), having slipped deeper and deeper into the rabbit hole with each passing day. I slept for ages and never felt rested when I finally pried myself out of bed, I hardly ate, I very rarely took the time to dress myself or make an effort on my appearance and I started questioning my every decision. But from the outside looking in, I made damn sure that any and all my connections back home and on social media thought I was cheery and enjoying my time off work because I didn’t want anyone to think I was pathetic or wasting away in London – even though that’s exactly how I felt.

I’ve battled depression before, but this was a new level I hadn’t experienced yet. I was so deep in it that it took me a very long time to even notice that I was, in fact, depressed. Coupled with the extreme anxiety and desperation to find work, it was a debilitating tug-of-war that left me utterly empty and defeated. Everything ached all the time despite having hardly moved all day every day, headaches plagued me regularly and I sought refuge under the covers more often than not. Part of the time, I wondered if I was genuinely sick and contemplated visiting my GP, but in hindsight, I now know better. Some days I was able to pull myself out of the fog to send out another job application or two, but eventually it became so much work just to think of positive things to say about myself in a cover letter that I just left it… for weeks at a time.

After a few months, I finally understood what was going on and reached out to my husband to help me not only find positivity, but to fully invest myself in finding a job. Thrilled that I was taking the initiative to make a change, he gave me a new perspective and ideas on how to improve my job search tactics. I’m forever grateful to him for his help, because not only did it give me the boost of encouragement I needed at the right time, it also brought responsive replies from the new jobs I was now applying for. These replies eventually led to interviews where I felt I could finally demonstrate, in person, what I could bring to the table.

An onslaught of rejection emails were replaced with interview opportunities and eventually having to choose between two jobs. What started out as a bleak search turned into a plentiful choice, and the sudden change in my outlook was enthusiastically welcomed. I finally felt like I had purpose again, had my footing balanced and could re-emerge into the world bright-eyed and bushy tailed.

These last six months have served as a harsh reminder that life is better handled with some outside help, and it’s okay to ask for words of comfort when they’ve been depleted from your own arsenal. I’m much happier now even compared to when I first arrived on UK soil. My relationship is stronger than ever, I’ve got a job I enjoy in a brand new industry and I’ve learned how to recognise negative thinking and come out the other side a better person. It wasn’t an easy journey and I don’t hope to repeat it any time in the near future, but I think it was necessary to teach me that I have value even when I don’t feel like I do. Starting your life over at a young age is an intoxicating idea, but it’s certainly not for the faint of heart. I’ve had to remind myself that most people would also struggle with such drastic changes all at once, and I’m not a weaker person because of it. I’m indebted to those who helped me realise my worth during a tough time, and encouraged me to find different ways to make London feel like home. I can confidently say that now, that’s exactly what it feels like. Even if it took me six months to get here. Better late than never, right?

Home is where you make it

Wants, needs and the struggle of choice

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“One of the most troublesome things in life is that what you do or do not want has very little to do with what does or does not happen”

We are creatures of habit. We like routines and plans and knowing what’s in store. Let’s face it – most of what we choose to do is chosen merely to try to force a particular, desired outcome later down the line. Those of us who claim to be spontaneous and adventurous aren’t 100 percent honest because even then, we are making a choice to obtain a specific result. The difference is we do so suddenly and very quickly, right? Personally, I’ve always been the type of person to prepare and plan well in advance to avoid any surprises popping up in the future. Realistically, this is an absolute ridiculous mindset because it’s impossible to deter all surprises, but I did my best to mitigate as much as I could. I always had a plan and a pocket calendar to write it all down in pen – never pencil. There’s no room for uncertainty like that in my planner! But my problem was that although I felt prepared for the things I had control over, this didn’t equip me to deal with changes to my plans gracefully. So while 21-year-old Tanya would’ve insisted that I would be out of the country by the summer after graduation and writing for some great foreign company, she was blindsided by what the universe actually threw at her. So while my plan was and still is to get out and live elsewhere, the timing has changed drastically and I was forced to readjust. And that, as some of you may know, is not an easy thing to do.

Hunter S. Thompson said, “On some days, you get what you want and on others, you get what you need.” What tends to be tough to swallow is that what you want may not be what you need… and vice versa. They don’t always go hand in hand, so how do we prioritize between the two? To put it more simply: which matters more? Obviously, this is completely up to your own interpretation, but I think it comes down to specific scenarios. For example, I want out of my hometown, but I need to feel secure enough to move far away. My desire to move is completely reliant on being properly prepared to actually follow through. So in my mind, this means many things: secure finances, sufficient work experience and timing. However, I always struggle with that last condition because that falls outside the realm of my control and sometimes my understanding. How will I know if the timing is right or not? Is the timing a direct result of whether or not I have the other two conditions fulfilled? And when you spend so much time trying to figure this all out in your own head, it tends to end with you throwing your hands up in the air and sighing, “Well, hopefully I’ll just know,” as if we think our intuition will guide us the right way. But our gut’s been wrong before, remember? Oh, great. Now what?!

In my personal example, I chose to go with what I needed more so than what I wanted at that moment in time. It was a painfully hard decision to make that was met with many tears and empty demands to know why (Oh, why!!) I had to make such a choice. I had a limited amount of time to decide, for myself, what mattered most. That’s an immense amount of pressure to deal with without knowing what, exactly, would follow. So did I make the right choice? I have no idea. Ask me in 20 years. For now, I think it’s best to just hunker down and stick to what I chose. Ride it out to the fullest and revel in it. I didn’t throw my fate up in the air to chance, so I have to be content with my decision.

“I’ve been doing this a long time, and I’ve come to learn that predictions don’t mean much. Too much lies outside the realm of medical knowledge. A lot of what happens next comes down to you and your specific genetics, your attitude. No, there’s nothing we can do to stop the inevitable, but that’s not the point. The point is that you should try to make the most of the time you have left.”

I know that even more changes will spring up down the road and I will have to face them without having prepared for them. That’s the way life goes, right? Sometimes I’ll have to deal with things one-by-one, other times everything will barrel toward me at full speed all at once. I will continue to try to plan for a future the best I can, but I have to allow myself some wiggle room for when the plan has to change. It’s all about attitude and how we act when things don’t go our way. As I said, we can’t control time but we can control how we spend it. So make the tough choices not because you have to, but because you want to keep going and living and growing. And when things don’t exactly go to plan, don’t take it personally. Adjust. “‘It’s not a personal world,’ he told me, ‘no matter how much of it recognizes you on the street.'”